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YOU Stories
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YOU Stories

Keep an eye on this, our special page, as we keep adding to it.  As the members of YOU share their experiences, you may find something that you can relate to!

  • Alex's Story
    • ... I am 16 years old. I had my loop ileostomy for three years now and looking after it has become quite a normal part of my daily life ... [read more]

     

  • Anne's Story
    • Like many other members, I too felt that at last I had found my "niche". The special support and closeness of Y0U fills that gap or "void" ... {ileostomy; Crohn's disease} ... [read more]

     

  • Brigette's Story
    • I was first diagnosed with Familial Polyposis in October 1980, aged 13. I had my first operation three weeks later ... {ileostomy} ... [read more]

     

  • Craig's Story
    • Not long after joining Y0U, I knew this group was for me. It was just what I was looking for ... I am 22 years old and have had Crohn's Disease for 11 years ... [read more]

     

  • Gary's Story
    • Here's a little story about my experience with stomal surgery, with exaggerations and elaborations courtesy of an overactive imagination.  Note that the following, story should not be taken as (completely) gospel ... {colostomy} ... [read more]

     

  • Grace's Story
    • The story I'm about to tell is, I'm told, not a very common one. My family has a disease known as Familial Polyposis ... {ileostomy} ... [read more]

     

  • Helen's Story
    • In writing this story I hope to give some reassurance to any female ostomate who is considering having children ... {ileostomy} ... [read more]

     

  • Jane's Story
    • I was diagnosed with Crohn's Disease in 1982.  I was only 16 and had been unwell for at least three years previously. Doctors had been unable to determine what was wrong with me and after a while I began to doubt myself and to think that maybe all the symptoms were in my head ... {ileostomy} ... [read more]

     

  • Jack's Story
    • Jack is now three and a half years old and, I am lead to believe, the youngest member of YOU ... {early childhood colostomy; ulcerative colitis} ... [read more]

     

  • Jessica's Story
    • The following story is about my move from primary school to my new school for my secondary school years. ... I have a disease called Neuronal Intestinal Dysplasia (NIDS). ... {colostomy} ... [read more]

     

  • Lana's Story
    • I have made it! I have made it to twenty-one. My night of nights has come, and it is my turn to shine! I am not allowed to worry about doctors, needles and hospitals ... {uterostomy; congenital} ... [read more]

     

  • Mike's Story
    • I've just got back from a 10k ride ... I'm back to full-time work, back to the footy, the movies, the park with my two children ... Mightn't sound like much but given where I was not that long ago, they're all "little victories" that mean a lot ... {j-pouch; ulcerative colitis} ... [read more]

     

  • Rosalind's Story
    • ... But often I don't think of my pouch at all, just like the old fashioned way of going to the toilet, you only thought about it when you were in need and hopefully only once a day (before U.C.) ... {j-pouch} ... [read more]

     

  • Steve's Story
    • ... I am 31 years old and I have had a permanent colostomy for about 5 months ... my original problem was Crohn's Disease of the large intestine, which was diagnosed about nine and a half years ago ... [read more]

     

  • Teddi's Story
    • Since I've had my colostomy since I was five years old I really don't know what it is like not to have it, so I guess my situation is a little different from the usual ostomate story ... {Hirschsprung's disease} ... [read more]

     

  • Terry's Story
    • In 1949, aged seventeen, I had a temporary stoma for nine months due to ulcerative colitis.  So what was it like to be a young ostomate during this time? ... [read more]

We end our section of personal stories with a Q&A compilation.

  • Pregnancy and Childbirth with a Stoma
    • ... we asked some of our young mums how they survived pregnancy and childbirth with a stoma ... [read more]