Talipes Information and Parental Support Group
TIPS


Heath's Story  

Part 2

Heath's Story Part 1    Part 3

28 November 1999

Heath finally gets his casts off on 1 December. Andy and I can’t wait – to give him a bath, take him swimming, let him crawl in the sand, not to be kicked by a boy with ‘concrete’ legs and watch him learn to walk.

On the 13 September 1999 Heath had surgery to correct his talipes at Wellington Hospital. He was eight months old.

We were on a downer the morning of surgery because Heath woke up with a temperature – OF ALL THE DAYS! We were concerned that surgery wouldn’t go ahead, but as it turned out it did. The anesthetist said there was no inflammation of the throat and ears so he was happy to proceed – thank goodness.

 

Heath Sitting

" today I'm off to hospital for surgery!"

Heath had been on nil by mouth from 8 am. He finally went into theatre after a lot of preparation and a long wait at 1.30 pm. He seemed to cope with the lack of food I think because he was unwell – so his appetite wasn’t what it normally would be. I took Heath into theatre and held him while they gave him the mask. He struggled and protested, which I kind of expected him to do anyway. I was a bit emotional walking out of theatre and leaving my baby behind, but one of the staff called out "Don’t worry, we’ll take good care of him", which just made all the difference.

Heath was in theatre for 3 hours, then went into recovery. The surgeon called us in the hospital Parent’s Room and told us that surgery had gone well. He had told us just before surgery that he would put pins in Heath’s feet as they needed a lot of correction.

After recovery they wheeled Heath down to Ward 19 (Children’s Ward). This is when we got to see him again. He was still sleeping deeply and had a morphine line in. His legs were wrapped in crepe bandages and he had on what they call "back slabs" – plaster of paris casts, open at the front to allow for swelling (the crepe bandage is wrapped over the top of the back slabs).

I stayed the night with Heath and decided to take the bed offered in another room as Heath was in a room with two other children. The nurse woke me at 1 am to give Heath a feed. He was still very drowsy and didn’t take much. Then I was woken at 6 am because he was stirring and he had a really good feed this time.

Heath after surgery

"these are my new casts"

Heath didn’t seem to be experiencing any pain at any time. I was really pleased with how the pain was managed. I know morphine is an extremely strong drug, but he was monitored all the time and they were switching down the amount given quite regularly. It was finally turned off at 4 pm the next day.

We got the first proper smile from Heath 24 hours after surgery. After the morphine was switched off we were transferred to our own room (4 pm, day two). At this stage Heath was playing and ‘talking’. He was also trying to move round in the cot. Fairly much back to normal, which was great. He was discharged first thing the next day – day three. We were told to keep giving him Pamol (panadol) for pain relief until the end of the week at least.

Well – things were easy in hospital compared with what was to come. We came home on Wednesday and on the following Sunday Andy, myself and Heath were back at the hospital because one of Heath’s feet had become really inflammed and swollen around one of the pins. I had actually been keeping an eye on it because of the problems some of the people who had written to the TIPS website had indicated when pins are involved. Luckily Heath didn’t get admitted for IV antibiotics as infection around pins can be very serious (portal of entry of infection to the bones). Anyway the orthopaedic doctor prescribed some oral antibiotics and we were sent home. I had to bring Heath back to the Orthopaedic Clinic on Tuesday and Thursday for a check up. The right foot wound was full of pus, but the nurse cleaned it and redressed it and by Thursday it was looking a lot better.

You may be wondering about all these trips to the hospital – well we are extremely fortunate to be living only 10 minutes drive from Wellington Hospital.

Two weeks after surgery Heath had another general anesthetic and had his feet reset and cast replaced. Blue fibreglass casts – lighter and not as bulky. Heath grizzled for 24 hours this time, waking hourly through the night. We thought he was just adjusting to the casts (or teething) – HOWEVER we discovered his right foot around the pin had become infected AGAIN. It was extremely swollen with nowhere to swell in the tight casts. So it was back to the clinic again for another prescription. They had to cut the front of the cast out at the foot as well to check the wound and relieve the swelling.

Heath’s foot became infected yet again after that course of antibiotics was finished so he basically stayed on antibiotics until the pins came out on the 18th October (5 weeks after surgery).

The anesthetist decided to give Heath a sedative before having the anesthetic to get the pins out and another set of casts put on. Apparently for the first change of casts they had problems because Heath was upset – I hadn’t gone into theatre the second time. I was a bit hesitant about Heath receiving MORE drugs, but if they recommend these things it is difficult to say no, especially if they say it will be of benefit to your child. Anyway, after the sedative Heath was VERY relaxed and seemed to forget that he was hungry. So he had the pins taken out (what a relief) and feet reset and new casts put on for another six weeks.

On the home straight………..


Heath Crawling

"When am I going to get a real bath?"

So how has Heath coped with all of this? Extremely well – amazingly well actually. The toughest time (apart from surgery) has been when the pins were infected. That seemed to cause him a lot of discomfort. Recovery after the two cast changes were tough as well – he was extremely tired and hungry and difficult to settle – but that was only for a short time.

As for his development – a lot of you parents, concerned about your child’s development, will be pleased to hear that Heath started crawling with his casts on at exactly 9 months. I thought he would be happy enough with this mobility. However, to our surprise at 10 months he was up on his knees reaching for the TV and video knobs (typical!). AND to top it all off he is now standing – YES - IN HIS CASTS – and shuffling his feet forward to get closer to what he is holding onto. I thought this would be absolutely impossible for him to do but he doesn’t know any different and just wants to stand up. So he is doing it all the time now. I never thought he would get this far with casts on.

So now we have two days to go until Heath gets his casts off. CAN’T WAIT!!

 

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