Parent to Parent Inner East

Monday May 10, 2004

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Links to sites to visit for information related to your child's disability.

 

 
  • The Companion Card - To assist people with a severe or profound disability to access leisure and recreational opportunities at minimal cost. Approved cardholders will be entitled to be charged for one admission only, when it is necessary for the person to be assisted by a carer (unpaid or paid) in order to access a sporting / leisure / entertainment or recreation venue / event supporting the Companion Card Scheme.

    Department of Human Services - Companion Card

 
  • Association For Children With a Disability - is an information, support and advocacy organisation for families of children with a disability in Victoria, Australia. The organization is run by parents.
 
 
  • Chromosome Deletion Outreach - this group has parent contacts and lists of support organisations for those searching for information on rare chromosome disorders 
 
  • Down Syndrome Association of Victoria - Support organisation for those who care for someone with Down Syndrome or who have Down Syndrome themselves.
 
  • Autism Victoria - Support and information for families and carers of those who have Autism Spectrum Disorders.
 
  • Autism Help - Launched by Gateway Services Geelong to support community inclusion of people with Autism Spectrum Disorders

 

 
 
  • Sturge Weber Foundation (USA) - US support organisation website. Contact in Australia : Jo Stanford (03) 9762 4630
 
  • Medline - access through PubMed. Look up published medical articles and medical information.
 
  • Sibling Support Project (Canada + USA) - Great information, articles and books on issues encountered by siblings of children with disabilities.
 
  • Yooralla -  Offer pre-school, school -aged and adult therapy services, residential accommodation, respite in and out of home, equipment, advocacy, employment and recreation services to people with a variety of disabilities.
 
  • Achievable Concepts - Adapted Recreation and Sporting Equipment for
    People with Disabilities and the Aged. Located in Moonee Ponds, Melbourne.
 
  • Epilepsy Victoria - Work to support people living with epilepsy in our own Victorian communities. With colleagues in the national coalition,  work to resolve an increasing number of issues at the national level.

 

 
  • Anglicare Parentzone - Parentzone offers a wide variety of parenting services and resources across the Southern Metropolitan area.  These services include - information, support and referral to all parents and caregivers of children from birth to 18 years.  Parentzone also provides a service to parent educators and others working with children and families.

 

 

Serious stuff with a twist. This British site aims not to be a resource but more to reflect
on experiences and give alternate slants on things that are important to people with a disabiltiy.
 

 

An information package produced for families, carers, people with disabilties and health providers regarding health issues for girls and women with a disability. Specific topics include sterilisation, sexuality and relationships.
 

 

Don't be put off by the name as this is an interesting and sometimes funny website on travelling with a disability. It offers a comprehensive range of travel reviews and, although they are mostly American tourist spots, there are also reviews for Australia, New Zealand, Britain and Africa. The reviews offer contact numbers, accommodation advice, helpful traveling hints and a list of wheelchair accessible beaches with beach wheelchairs.

 

This is the Civil Aviation Safety Authority website section on "What travellers need and can expect". Travelling with a disability requires careful planning, good negotiating skills and occasionally, assertiveness. This website provides you with information needed to ensure you have a smoother and more comfortable trip. Remember, people with disabilities have rights and that airlines and airports are bound by legislation to provide services for people with a disability.

 

Reading and listening to text is a great way to boost literacy skills. Standard audio books are narrated at a speed that is often too fast for many people with an intellectual disability,learning difficulties or low vision. This organisation offers print books with cassettes narrated at a range of slow speeds which enables the user to develop their listening and reading skills.

 

 
 

 

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For further information email
The Co-ordinator Judy Little:
 jsalgo@netspace.net.au
 

This site was last updated 10-May-2004

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