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Services for Positive People
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 | Haemophilia Foundation Victoria Inc
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 | Aims and Services |
| Contact Details |
| Alfred Hospital Haemophilia Treatment Centre |
| HistoryThe first Australian Haemophilia Society was formed in Victoria in 1954. In 1986 it became an incorporated body and in 1993 was renamed Haemophilia Foundation Victoria. The Foundation is managed by a volunteer committee of up to eleven members who are people with haemophilia or their parents or partners. This Committee co-opts professional staff from the Haemophilia Treatment Centres at the Alfred and Royal Children's Hospitals. In response to HIV/AIDS, the Foundation obtained funding through the then Health Department of Victoria in 1984. This funding is spent on personnel and administrative expenses. The centre has a secretary and a community worker. In addition, a social worker is based at the Alfred
Hospital Haemophilia Treatment Centre |
The primary aim of the Foundation is to support people with haemophilia and associated bleeding disorders and their families. HFV endeavours to:
| educate and inform members on all aspects of haemophilia and HIV and all services available to them |
| provide counselling and emotional support |
| provide physical assistance to people, such as necessary equipment and transport |
| liaise with and educate the community on haemophilia and HIV |
| encourage research into areas of benefit to persons with haemophilia |
| co-operate with the Red Cross Blood Transfusion Service to encourage blood donations. |
HFV has access to local and overseas literature and has a wide range of books and audio-visual material for loan to members. In addition to information on haemophilia, these include books on pain relief, diet and exercise, HIV/AIDS, alternative therapies and children's books. Information pamphlets are available and HFV provides speakers for schools and community organisations interested in haemophilia or the work of the Foundation.
Skilled professional counselling is available through the Haemophilia Social Worker at the Alfred Hospital.
As a self help group we offer:
| telephone contact with other members (i.e. mothers, wives and persons with haemophilia |
| workshops |
| family camps |
| conferences |
| playgroup |
| Christmas picnic |
| Social Functions |
The Foundation subsidises
| SOS Talismans and Medic Alert |
| Haemophilia reference books |
| ambulance subscriptions |
| electric shavers |
| The Community Worker and Social Worker can also assist with financial difficulties. |
A quarterly newsletter keeps members informed of Foundation activities and events, and provides information on haemophilia and other relevant topics.
The Centre is open from 9.00am to 5.00pm, Mondays to Fridays, and visitors are welcome. It has a kitchen and bathroom facilities, and operates both as a formal meeting place and drop-in centre of city and country members.
Suite 5, Ground Floor,
800 Nepean Highway
Moorabbin 3189
Tel: (03) 9 555 7595
Fax: (03) 9 555 6365Information reproduced from HFV general pamphlet
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Send mail to posvic@msn.com.au with questions or comments about this web site.
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