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Community Services & Resources:
Parenting Strategies & Specialised Equipment: Babies

 

baby lifter                    baby wheelchair seat

 

Parents with a disability often need to find different ways of doing things to parents who do not have a disability. This may involve finding a method or strategy for handling a particular problem: for example, communicating with a toddler or physically picking them up when you cannot see them.

In this section parents with disabilities share some of the strategies they have found useful. The ideas listed reflect the personal experience of parents and the methods individuals adopted to address the problems they faced. Since every person’s experience of parenting with a disability will be different, the ideas are suggestions only. Visiting places such as the Independent Living Centre in Brooklyn, the Vision Australia Foundation’s ADAPT Advisory Centre at Kooyong, or the Royal Children’s Hospital Safety Centre is very worthwhile to get further ideas. People are encouraged to explore these and other resource options, some of which are listed in the resources section of this manual.

Some parents with physical and sensory disabilities will find life a bit easier if they use specialist aids and equipment. Since technology is improving all the time, the range of equipment that can help is also continually expanding.

Specialized equipment is an essential tool for parents (especially those with a physical disability) to administer daily parenting tasks.

Tasks such as changing nappies, making up baby bottles and solid feeds, bathing and dressing children is challenging because simple tasks can become time consuming and difficult for parents with a disability. This section contains some of the problems parents with disabilities have faced and some solutions they found useful to make parenting with a disability a bit easier.

 

scooter trailer                  baby electric hoist   

 

General parenting strategies, by parents with disabilities: Babies

Problem Solution

Feeding: A mum with a vision impairment finds it difficult making up formula, filling bottles to the correct amount, warming bottles for use, cleaning and sterilisation of teats and bottles.

Solution: She found High Mark, an orange thick marking paint to mark the level on each bottle. It dried almost instantly comes in a tube and you can feel the mark. It was available through the RVIB VISIQUIP Centre.

Feeding: A mum with a physical disability found it hard to hold her newborn baby so the baby will feed comfortably and minimise winding. She found it hard to bring up the baby’s wind so the baby would recommence feeding.

Solution: She found she had to contact several services for help. The Maternal and Child Health Nurse was able to give her general advice on feeding. When the baby would not settle, the nurse advised her to take the baby to the doctor or hospital. She contacted the Nursing Mothers Shop in East Malvern who gave her some tips on breast-feeding on cassette. She contacted Yooralla’s Independent Living Centre and the Technical Aid to the Disabled (TADVIC) and found a front pack hanging pouch to hold baby steady and close.

Nappies and Pilchers: A mum and dad, one with a hand deformity and the other with a vision loss found it impossible to use nappy pins. They tried clips but these did not work. They needed three dozen nappies as a baby can go through up to a dozen a day. Putting the pilcher over the nappy using press-studs was also impossible.

Solution: After many phone calls they found Fluffies fitted nappies at the Nursing Mother’s Shop in East Malvern. These nappies were easy to put on since they have a Velcro tab system and are just as absorbent as ordinary cloth nappies. They cost $6.95 each or $38.95 for half a dozen.

While they cost a little more than standard cloth nappies, the once only outlay works out a lot cheaper and environ-mentally friendlier than putting a child in disposable nappies until they are toilet trained. They also found Merrily Merrily pilchers fasten on over the nappy using a Velcro system and cost $6.95 each. Fluffies and Merrily Merrily pilchers are the Nursing Mother’s Association’s own brand.


Nappies: A mum with cerebral palsy and twins found it hard to change nappies.

Solution: She found a nappy change table was available that was specially designed for wheelchair users. Information about it was available from the Yooralla Independent Living Centre. When the baby became mobile, she could change the child more easily if the child was in the pram. This meant she did not waste precious and limited leg power chasing after them.

Making up solid feeds for baby: A mum with a hand co-ordination problem and vision impairment found that manually cutting up vegetables potato and pumpkin into small pieces and mashing it was hard.

Solution: She saved up for a good food processor. In the meantime, she looked for a daily living skills occupational therapist to help her learn skills to do these tasks safely.

A therapist from the RVIB came each week for a few weeks and worked with her till she could manage these tasks. She found out about a Rocker knife at the Yooralla Independent Living Centre in Brooklyn that helped her chop vegetables safely. The RVIB also recommended a large chopping board with a secure surface and colour contrast to minimise accidents.


Bathing: Mother with use of only one arm has difficulty bathing baby.

Solution: Mum adapted existing equipment to enable her to bath her baby. It was an ordinary old style car seat with a towel cover over it to have the baby in a sitting position in an ordinary baby bath. This enabled her to bath the baby with one arm. A Bath Aid similar to this has an angled frame to support a small baby in the bath. It has a metal frame and towelling cover.

 

baby change table                 pram lifter

 

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