Chronic Fatigue Syndrome Resources on the Internet

Getting started on the Internet

To get connected to the Internet, firstly you will need a computer and modem. A modem is a device, which will allow your computer to connect to the Internet via a telephone line. Secondly, you will need to set up an account with an Internet Service Provider company (ISP). You will then be able to dial up to the ISP, which will give you a connection to the Internet. There are many ISPs to choose from and they offer different account plans depending on how much time you want to spend on the Internet and other factors, so shop around and get a few prices. You will find ISPs listed in the Yellow Pages. The ISP should also supply you with all the Internet software to get you started.

Once you are connected, you have access to many parts of the Internet. It is best to take it slowly and learn one part at a time, starting with the easiest, which is the World Wide Web. The main parts are explained below.

World Wide Web (WWW)

The WWW is a highly graphical presentation of information. This is where 'Home Pages' can be found. The WWW is probably the most popular part of the Internet and can be a very good source of information. It is very easy to access the WWW with one of the popular browser programs, like Netscape or Internet Explorer. You can search for information easily, just go to a site such as www.excite.com or www.altavista.com and type in a search word. You will be returned with a list of web sites, which match your search criteria. Once you get to one site of interest, they will often have a list of 'links' which will take you to other similar sites.

File Transfer Protocol (FTP)

This is a method used to transfer files, such as text documents or programs from a site on the Internet to your computer. You will have to know the address of the sites which you want to transfer the file from. You can use a separate FTP program to get these files, but a WWW browser such as Netscape can also handle FTP and is often easier to use. In this case, you can just click on the icon or name of the file, and it will be transferred to your computer.

E-mail

You can send electronic mail to anyone in the world using e-mail. You can get a separate e-mail program or use Netscape's e-mail facilities.

Internet Relay Chat (IRC)

IRC allows you to chat in real time by typing on your keyboard with other IRC users from around the world. There is a CFS channel where other people with CFS come to chat. IRC can be a little difficult to learn, so you will need to give yourself some time. You will also need a special program to use IRC (see below).

The two main programs are: (copy and paste these addresses into your WWW browser such as Netscape).

PC users should get a program called 'mIRC' available from http://mirc.eon.net.au/

Macintosh users should get a program called IRCLE available from 

http://www.xs4all.nl/~ircle/

To access the CFS channel on IRC, you will need to set up your IRC program, then connect to a server. A server which you can use is davis.ca.us.undernet.org which is a USA server. You may set this up in your IRC program, or simply type /server davis.ca.us.undernet.org to connect. Once you have connected, type /join #CFS and you will join the channel. If you want to change your nickname, type /nick newnick but substitute newnick with the new name you want to use.

You will see a list of users, and messages should appear on the public screen. You may now type in the main screen and everyone on the channel will see what you have typed. If you want to send a private message to someone, just type /msg nickname message where nickname is the persons name whom you want to send the message to, and message is what you want to say. If you want to talk to that person for a while, it is easier to open a private message window for them. In that case type /query nick and a window will open for that person. Whatever you type in that window will only been seen by that person. You will have to switch back and forwards between the private and public windows to send messages.

If you wish to join an Australian server, type /server tig.melbourne.oz.org which will have mainly Australian users. To view a list of channels, type /list There is a CFS channel on this server, but it isn't always in use.

Mailing Lists

A mailing list is an e-mail subscription service. Each e-mail sent to this list is sent to everyone else subscribed to the list. Some lists are very busy and you may end up receiving many e-mails each day, so don’t subscribe to more than you can handle.

CFS-Y Mailing List 

An e-mail discussion group for youths aged 25 and under. 

http://rdz.acor.org/lists/cfs-y/

OzME mailing list 

A mailing list for "people with CFS/CFIDS/ME, FMS, MPS, or any other related illness like MCS." As the name suggests, most of the messages are related to Australia/NZ.

http://www.tertius.net.au/lists/ozme/
 
 

CFS-20s mailing list 

A mailing list for "20-somethings with CFIDS/CFS/ME, their spouses or significant others, and 20-somethings with CFIDS/CFS/ME-related conditions."

http://members.wbs.net/homepages/c/f/i/cfids/cfs20s.html

How to subscribe to CFS NEWS

The information presented below can also be found at this site, and the latest newsletter is also available here. http://www.cais.net/cfs-news/cfs-news.htm

The CFS Electronic Newsletter is an excellent way to get up to date information relating to CFS research and other issues from around the world. It is sent to you by e-mail on a regular basis.

To get a free subscription to CFS-NEWS, create an e-mail message which says SUB CFS-NEWS YourFirstName YourLastName (but use your own first name and last name) and send to the following address: LISTSERV@MAELSTROM.STJOHNS.EDU The subject can remain blank.

If you have any difficulty with this procedure, contact the editor at the e-mail

cfs-news-request@maelstrom.stjohns.edu
 
 
 
 

List of CFS related web sites

Many of these sites also have links to other CFS sites of interest.

Australian CFS Society Homepages

CFS/ME Society of Victoria Inc.
http://www.vicnet.net.au/~mecfs

CFS/ME Society of NSW Inc
http://www.me-cfs.org.au

CFS/ME Society (S.A.) Inc.
 http://sacfs.asn.au

CFS/ME Syndrome Society of Queensland Inc.
http://www.mecfsqld.org.au

ACT CFS/ME Society Incorporated
http://www.spirit.net.au/~masmith/aus_info/act_cfs.htm

Canberra Fibromyalgia and Chronic Fatigue Syndrome page
http://www.spirit.net.au/~masmith/

The Northern Rivers CFS/ME/FM Support Association's http://www.nrg.com.au/~nrmecfs/

NewsgroupsA special newsgroup program is required to access Newsgroups. Newsgroups are a list of categories which people can send public messages to. You can scroll through the titles of these messages and choose to read any that interest you. You can then reply to these messages or add your own new messages. There is a newsgroup dedicated to CFS. It is called alt.med.cfs There is also one for fibromyalgia. It is called alt.med.fibromyalgia The following Internet site contains more information about the alt.med.cfs newsgroup. 

http://members.aol.com/cfslists/cfsrules.htm

Where to get Internet related programs

If your ISP didn't supply you with all the programs needed to get started on the Internet, you should be able to get most of what you require at one of these program libraries:

Macintosh Users: http://tucows.skynet.net.au/mac/macintosh.html

or http://www.zdnet.com/mac/software/browse_default.html

PC Users, using Windows 3.x: http://tucows.skynet.net.au/window3x.html

PC Users, using Windows 95/98: http://tucows.skynet.net.au/window95.html
 
 

By Bernhard Liedtke

November 1998, M.E./Chronic Fatigue Syndrome Society of Victoria Inc.

Last Updated 24/06/2004