 |
 |
Highlights 
Draft GuidelinesSydney Conference
The
Society About the SocietyState Society AddressesProducts for PurchaseJoin The SocietySend Me Information
Making
Contacts E-mail Pen FriendsLink-up ProjectSTUFFED Chat Room
General
Resources About CFS/MECommunity ServicesSocial SecurityBook ReviewsOpinionsYour SayMiscellaneous
Medical
Resources Journal PapersLectures/ConferencesResearchSymptoms/DiagnosisTreatments/Management
Reports
Archive
Updates Media WatchParliamentary Reports
Chronic Fatigue Syndrome E-mail Pen Friends
People with Chronic Fatigue Syndrome are often socially isolated by their condition. Those listed here are happy to be contacted by e-mail, so if you have CFS/ME and are lonely or just want to correspond with someone who understands, you may like to consider writing to someone. If you would like your details listed below, please go to the registration page.Note that this list is now in reverse order, that is the most recent contacts are listed at the top of the first page while the contacts added the longest time ago will be found on the last page.
If you would like your name removed from this page, please e-mail lidija78@yahoo.com
[ Next Page ] [ Final Page ]
Name Sex Age Country Violet F 48 Canada chamilton5259@yahoo.ca I want to know if any of you have had sleep problems I am in a study now I journaled for 14 day my activities and it is clear that my sleep is disrupted I have CFS/ME 8 year and have made great strdes in recovering but would like to see if more can be done Vincent M 48 New Zealand everestcoffee@hotmail.com I have CFS/ME and would like to know what others do to overcome it Khush M 35 Melbourne Australia kwadia68@hotmail.com I've had CFS/ME for about 16-17 years now . Its a lot worse in winter than in summer. I suffer from severe food and chemical intloerances and also have a lot of body ache and pain and a TMJ problem for the last 8 years. I love footy (hawks member) cricket and all sports. Played for a pool team for 8 years until the smoke in the pub made breathing impossible. Would love to meet other people to see what treatment they are going through. Marcia Saunders F 55 Australia marci@netconnect.com.au Have had CFS/ME for 15 years plus. Feel better able to cope these days. Spent many years trying to change myself in order to get well. Now I have accepted myself as great, have faith in my higher self and self confidence in most areas of my life even though I can't function as a well person can. Have travelled to the east and europe also looking for answers and seeking truth. Would love to talk to others who feel good about themselves despite there health issues and are willing to continue on an adventure to discover the real truth about CFS/ME and beyond. Skettz F 24 Australia skettz@yahoo.com.au Let's see, how is it that we spend our whole lives...and ahem..'resting times' in our own heads and yet faced with entering a paragraph about ourselves we are suddenly left without descriptives! Yikes! Ok well the brief run down is that I am from Melbourne, Australia and have had CFS/ME and it's collective baggage for 11 years. If you choose to drop me a line I always reply :) Take Care People. Cheers. Sharni F 19 Australia ski_bunny36@hotmail.com I was diagnosed with CFS/ME about 6 months ago but have been suffering from it for approx 2 years just after having glandular fever during year 12. I'm finding it difficult to deal with because nobody else understands what i'm going through and how i'm feeling so it would be really great to chat with someone who does! I'm in my 2nd year of PE teaching at uni and love to play netball and i also coach and umpire when i can. I also love snow skiing, piano, tennis, the beach & travelling. Jan F 47 Australia janeno2000@yahoo.com.au I am interested in talking with someone either via here or phone to help me step through this and someone who understands. Andre M 22 Brisbane Australia andremason1@hotmail.com Hi all! I've had CFS/ME for around 6 years now and since I moved here from Sydney 2-3 years ago I havent had a chance to make any new friends. It's kind of catching up on me and I'd love to chat to someone who knows what it's like. I love music, clubbing, computer games, writing poetry and just having fun! :) I'd love to talk to someone so feel free to email me or get me on MSN (same address). Take care! Brian Walsh M 31 Australia WALSHY73@bigpond.net.au Interested in talking to people in Tas or Vic who suffer CFS/ME Wendy F 50 Melbourne Australia empire@netspace.com.au Hi! I am only 50 and have been unable to work due to FMS for the past 4 years. I have never contacted a support group in the 4 years I have had Fibromyaglia because I always thought the symptoms were different, but since CFS/ME/ME and Fibromyalgia all seem to be lumped together now in support and research, I have a VERY IMPORTANT question for anyone who may suffer hypersensitivity to cold due to FMS. Has anyone moved to a much warmer climate and found it substantially beneficial? My husband of 30 years and I are wondering whether to up stakes and move to northern QLD in the vain hope the heat may help, but that means leaving the kids and grandkids behind, my main worry. ANYONE OUT THERE WITH ANY INFORMED OPINIONS PLEASE? SINCERELY wendy (desperate) Heather F 20 Melbourne Australia anne_2k_aust@hotmail.com I haven't been "officialy" diagnosed with CFS/ME, but am certain that i have it. I feel extremely fatigued 99% of the time (I get terrible episodes though usually at shopping centres where the fatigue just hits me out of nowhere and I struggle to keep my eyes open). I get muscle spasms and pains throughout my body, have poor concentration and memory, non restorative sleep. The past year or so I have felt mentally fogged, disconnected from reality and lately had weird episodes of vertigo and dizzyness. I just don't know what to do with myself and even the part-time job I hold is an extreme struggle for me. I'm looking for someone who can relate to me. My interests include dogs, movies (including animated), various music (mostly rock), some sci-fi tv shows & drama, msn chatting & emails, drawing, getting away from the city (beach etc.). Aidan M 16 Australia ajk123a@optusnet.com.aua I became unwell in 2003 and was diagnosed in March 2004. My parents and I would like to hear from others my age to find out how you are coping at home and at school. l am doing year 11 at school. Chris Mueller F 52 Australia cmueller@chariot.net.au I've had CFS/ME for 3 years. I like to read books, research on the net especially about CFS/ME. Gardening although I can't do much of it. I am into alternate medicines & natural diets & health treatments. I'm keen to hear from anyone else who is using natural remedies to try to improve the CFS/ME condition. Karen F 15 Australia kazmcm@hotmail.com I like reading, writing, movies, and chatting pointlessly. I've had CFS/ME since the beginning of 2003. I'd love to chat to anyone (preferably under 20yrs though) mwah! Brett M 37 Australia dolittle_36@hotmail.com Hi there everyone. I have been suffering CFS/ME to a varying degree for the past 5 years or so, and like most others, still trying to understand and come to terms with it. I am grateful that I am currently able to do most everyday activities. It's the bane of my life, but also the biggest challenge :o) It's always good to hear from people who really understand... Clare F 21 Sydney Australia cald4676@mail.usyd.edu.au Hi, am coming up for my 3rd year anniversary, just found this website, its amazing to read about all your experiences. I recognise myself in many of you. Have just spent two days in bed after having been fairly well for months. I still struggle a lot with coming to terms with the possibility that this could be a life long problem. I became ill after getting glandular fever while overseas on a gap year in england, in the last year I was also diagnosed with hyperglycaemia which is such a pain but knowing has helped my condition a lot. Happy to chat people. Go to next page Go to final page Further contacts may be found at a site maintained by a person with CFS/ME from Western Australia.
Last Updated 24/08/2004