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In the future, we will be creating an Australian Jeune Syndrome Association Fund with the Melbourne Community Fund who will accept donations on our behalf and also monitor the administration and taxation requirements.
Any donated funds will be put toward further medical research into Jeune Syndrome as well as equipment which can help improve the quality of life of those affected by Jeune Syndrome. All requests for funds will be approved both by the Association (in the short term) and the board of the Melbourne Community Fund once this fund is established.
We will also be undertaking some fundraising activities to help build on donations. |
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