preemie-l request for info &/or stories from parents w/ preemies w/ brain bleeds

Jackie Sturgill (jsturgill@stic.net)
Tue, 18 Jun 1996 00:55:56 -0500 

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Date: Tue, 18 Jun 1996 00:49:24 -0500
From: Jackie Sturgill <jsturgill@stic.net>
Organization: RE/MAX Associates - San Antonio, TX
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Subject: Preemies W/ brain bleeds I, II, III,IV
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I am interested in stories from parents of preemies that experienced 
cerebral hemmorages (brain bleeds)  My son, Adam (born 24 weeks, 1 lb 13 
oz.) had a bleed, grade IV, his 3rd day of life.

I have been told by out neonatolist that his brain may compensate for 
the areas(gray matter) that have been damaged by the blood, the dead 
spots known as (& please pardon my butchering of the spelling) 
"leokomalaysia". We have been informed that the preemie brain, due to 
its prematurity can often alternate or transfer functions of the brain 
to other areas.  In other words, the brain will compensate for the areas 
that no longer work.

Has anyone, 1) experienced this w/ their child & 2) found this to be the 
case?   I have asked our doctor to be completely straightforward w/ us & 
not to sugarcoat anything?  Is he just giving us "Pie in the Sky" or can 
this really happen?

If you have not experienced this, but have names of resources I can 
devour, please let me know.

Thank God for this group.  I swear I thought I was the only one around 
the states w/ a preemie...& a computer. (I'm glad to know that not all 
preemies are born to teenagers or crack moms.)
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