Re: preemie-l Perception of Preemies from the "Outside"

Amy & Kyle Ellars (lrz@indy.net)
Sat, 15 Jun 1996 11:33:25 -0700


Todd, Suzanne and Glenn Palmer wrote:
> 
> I too have never seen an article or news story that didn't portrey premature
> babies as anything but "tiny babies."  Even the stories that touch on the
> extremely premature babes always have a sugar-coated ending.
> 
> I think this is a great injustice to us all, on each side of the fence.
> 
> It alienates us, as preemie parents, because most peoples' reactions are
> generally, "You're worrying too much.  You need to relax.  He'll be fine."
> 
> I could have throttled so many people when Glenn was in the hospital.

Suzanne,

I'm beginning to think that most people just don't want to face reality. 
I have wanted to correct(polite term for club) so many people for there 
comments.  My favorite was when Zoë was very ill-"Well, they can have 
more children." I've never been so appalled.

It is a defense mechanism of these people to deny the severity  of the 
situation.  Another favorite "Oh she'll be home in a couple weeks" We're 
now going on 6 weeks.

I just have to forgive these people for their ignorance & try to remain 
patient.

Amy-wife to Kyle & mom to Zoë 27weeker 1lb 12 oz born 5/9/96