Re: preemie-l From Susan: INFORMATION NEEDED A.S.A.P! (fwd)

ypaschke (ypaschke@cclink.fhcrc.org)
Thu, 6 Jun 1996 14:51:37 -0700 

     Susan:
     
     I think you saw the story on the twins list.  I remember something
     about that.
     
     I would say write to the owners of that list and find out how
     to use the archive and find the stories.
     
     Fontenals shouldn't be totally closed till 2 years old.  Even though
     you may not "feel" the fontenal, it is probably still open.
     
     I would recommend having your friend wait for the neurosurgeons
     diagnosis.  He is more qualified than a ped. and I would trust his
     opinion overall.  Then I would write a nasty note to the AMA about
     the other doctor.  Just my opinion.
     
     Good luck, and keep us posted.
     
     Yvonne


______________________________ Reply Separator _________________________________
Subject: preemie-l From Susan: INFORMATION NEEDED A.S.A.P! (fwd)
Author:  Gary Hardy <garyh@yarra.vicnet.net.au> at cclink
Date:    6/6/96 9:50 PM


     
     
---------- Forwarded message ---------- 
Date: Wed, 5 Jun 1996 13:06:47 -0400 
From: KATNEM@aol.com
To: Preemie-l@vicnet.net.au
Subject: INFORMATION NEEDED A.S.A.P!
     
Hi All!
A while back I posted for help for my friend Susan Moffat who has 26 
weekers(born triplets, lost one). Susan called me hysterical this morning 
because at her *twins* check up yesterday, her Ped informed her that both of 
her babies had premature closing of the fontanelles and that both babies need 
emergency surgery to put a plate in their heads. Her babies are now 10 months 
old and I recall that my 31 weekers fontaneelles closed at 7 months or so. Her 
Ped told her the fontanelles should not close until two years. That sounds too 
long to me.
Her babies show NO signs of head pressure, her daughter sticks her tounge out, 
but is also teething. Her Ped's nurse went so far as to call her in the 
evening to ask " If her eyes are bulging out yet or have they fallen out?" I 
can't imagine a professional putting such a scare into someone. She put in a 
call to the NeuroSurgeon and he said he was not concerned unless facial 
distotion had begun or unless the bulging became totally apparent. She has an 
appointment to see him on tuesday.
Has anyone been through this? Does anyone have statistics or medical info 
that can help calm her down? She is beyond freaked out and I would like to 
give her something a little more reassuring to ease her worries. Doug?, 
Helen? are you out there?
I recall a piece on either Dateline or Turning Point a few months back about 
Colorado doctors who were constantly calling for emergency fontanelle surgery 
and are now being sued up the ying yang. Does anyone recall that story?
I would like to call her sometime this evening with some better news. If you 
can help in any way, PLEASE E-MAIL A.S.A.P., I will check my mail several 
times today! 
TIA,
Susan (Mommy to 31 1/2 weekers, Katrina and Emily, now 2 Years old and 
perfect ! )