speech delays

Gary & Tammy Bangs (gbangs@earthlink.net)
Mon, 04 Mar 1996 18:33:28 -0800


Welcome to Dave!!!

Dave brought up speech delays, I also believe this has been mentioned by some 
others too.  Taylor has severe speech/oral motor delays.  He will be 3 next 
month, he is only mimicking.  He has trouble with the sounds require the use 
of tongue to roof of mouth. His 16 mo old brother is just about at the same 
level of speech.  Taylor just had a big evaluation, and was given some pretty 
depressing labels, most of which I do not agree with.
The tests lasted for 2 weeks and he spent an average of 1 1/2 to 2 hrs at 
each test (one a day).  Taylor decided very early that he didn't want to be 
there and did not respond well.  He especially did not respond to the 'verbal 
commands' ie.. 'point to the dog, touch your nose, draw a circle.' I do know 
that he knows what those things are, he just wouldn't respond.  The one 
bright spot of the testing came when the child psychologist brought out a 
series of tests that are usually used on hearing impaired children.Taylor 
does not have a hearing problem, he is just very good at ignoring what he 
doesn't want to deal with,  something I'm sure he learned in the NICU.  
Anyway this test involved matching pictures. It was totaly non-verbal, he was 
given no direction from us.  He had to figure out what to do completely on 
his own.  He performed up to a 4 1/2 year level.
This has led me to believe that the 'experts' are not that competant at 
dealing with the special lifestyles of preemies.  They simply learn in a 
different way that full term children.  During the time that most infants 
are learning to suck and do things with their tongues, ours are dealing with 
having plastic tubes shoved down their throats.  when most infants are 
dicovering how their arms and legs work, ours have to deal with how they are 
going to move and breathe at the same time.

The point that I'm trying to make is that not so long ago dyslexics were 
given some prettey dismal labels, and given up on.  Now the 'experts' have 
discovered that they must be tought in a different way.  I believe that 
preemies are the same.  They just need to be taught in a different way.  THe 
norm just doesn't work for them.  THey deal with so many other things than 
most kids do.
A friend of mine made this observance of his preemie twins: when asked to 
'feed the baby' my son ignored them. Later we asked him to give the baby a 
nose canula and he did it in an instant.
Taylor was 22 mo old when he finally walked solo.  At the time this was 
considered around a 12 mo delay.  Three days after he took his first solo 
steps he began to run.  THat means in 3 days he caught up 12 mo.  I fully 
expect Taylor to spout sentances soon.

Tammy, mom to Taylor and angel Alex, and Travis, and wife to 'finally home 
again' Gary