Adjusting when baby finally comes home from the hospital is tough, even
with a healthy full term child, when the baby comes from a long stay in the NICU.... it is
Lisa asks for advice, "I am so tired.
Cameron is wearing me out!! I am finding that I am so exhausted from spending 4 months in
the NICU and now that she is home requiring 24 hour a day care I am even more exhausted...
She has had 11 apnea events since she came home so now she is back on the caffeine...
Feedings are one hec of an event. Sometimes she will take 1 - 1.5 oz and sometimes 2.5 oz.
Sometimes she wants to eat every 3 hours, sometimes every 4. Sometimes she will take only
1.5 oz for a few feedings in a row and then she will want 3 oz. She has gained weight
since she has been home and the ped told us to let her make her own schedule...
I love Cameron and I love having her home but I am so overwhelmed. I have actually been
having anxiety attacks!! She is such an angel but is so much work...
Oh my goodness - people just want to touch her!! I feel like I am that Viper Car Alarm -
"Warning!! Step Away From The Baby!!" and then I sputter all those different
Penny adds, "...we went through the same things when
Chloe came home. She was always the best baby while she was in the hospital but once we
got her home she was just a grump...
Imagine spending 4-5 months in one place and then suddenly you are in a completely
different place and you don't know why...
Anyway just wanted to let you know that you are not alone. Just give things a little bit
of time. Oh and I usually don't get a shower until mid afternoon!!!"
Lynn offered, "I tried to do it all, ALLLLLL that the
twins entitled in there daily routine, and then the normal house hold items, laundry (ours
& the twins), cooking...
Finally my husband said, to me "God let us bring home these twins, and now he wants
us to take care of them" We can't do it all, we will eat carry out for the next 10
months if necessary...as for the laundry....ours will get done eventually....from now on
the twins are our first priority" If he hadn't given me this support, I don't know
what I would have done...
We kept charts, we documented everything!!!!!! We tried to stay on a routine just like the
NICU. And I don't see ANYthing wrong with it. Having two, it waaas the ONLY way to even
try to be organized!!!"
Jan includes, "As hard as the NICU stay was for our
family, I have to say that coming home was SO INCREDIBLY DIFFICULT. I was not prepared for
the level of difficulty. I called the nurses at one point and said "Were they always
this rowdy and I just didn't know?"...
Coming home from the hospital was definitely a weak link in the NICU support system. We were trained, inserviced but no one really talked about the emotional
load that came home along with the twins...
They are no longer babies that require hospitalization, but neither are they regular
Sue adds, "I had the same conversation, only I was told,
"No, she slept just fine here." So I couldn't help but wonder what I was doing
wrong. She would not sleep more than one hour in a row. My husband and I ended up
splitting up the shifts. He would stay up with her at night and sleep from about 8AM til
One thing we found finally that helped was the battery run cradle that swings."