The Early Edition
vol 1 edition 1 September 1997
|In This Issue...
Topics of the
Expressions...pages 8 - 10
Dealings...pages 13 - 14
Editorial Notes...page 18
|Welcome to the premiere
issue of the Early Edition.
This newsletter is the brainchild of an internet support group known as PREEMIE-L.
PREEMIE-L was formed just about 18 months ago out of one couple's desperate search for information and support after the premature birth of their son. When Vincent was born at 26 weeks, Gary Hardy and Anne Casey turned to the internet in search of information, advice, and support... they found very little. Hoping there were others out there in the same search, they formed an incredible support network, consisting of a web site, and e-mail based, as well as message board type, discussion forums. Their hope was to create a way for parents and caregivers premature children to find each other, and share their knowledge, experiences, and questions. That support network has literally exploded. The network now spans the globe and consists of hundreds of members. The group includes not only parents and extended family members, but also many doctors, nurses, therapists, and even authors.
One of the overwhelming remarks we hear with new members is that they wished they had found such support earlier...
We hope this newsletter will be a way to expand the reach of PREEMIE-L, and bring it to those without internet capabilities.
This newsletter is a way to tap into the various topics currently being discussed by PREEMIE-L. The one overall idea is that knowledge gives us power, and the ability to make informed educated decisions. Like any good discussion, the topics are not always happy ones. We must explore the dark sides of having premature children if we are to truly understand and cope.
Be patient, the face and the content of this newsletter is bound to go through many changes in the editions to come. We hope to continue to add columns and information as our vision grows. We are currently working on adding columns dealing with multiples, special needs, and dealing with the prematurity issues as the the children grow older.
|Disclaimer: The writings and opinions contained in this newsletter are simply that, and are in no way meant to be considered as medical advice. Nor are they meant to replace any medical advice. Always discuss concerns with your physician.|