A Preemie Primer
Reaching Out To Family and Friends - Encountering Problem Situations

By: Kerry Bone
This column is specifically designed to better prepare friends and family through knowledge and understanding to deal more empathetically and compassionately with the different feelings and needs of a preemie parent. Of course, the information is merely a guideline toward understanding feelings and should be ultimately be discussed with the parents to communicate effectively.

Problem Situations
Just as an ordinary room can be an obstacle course to a blind person, so can the everyday world be full of hazards for a premature parent - hazards that do not exist for women with full-term babies and children. Many times friends and family members do not understand the “mine-field” that exists for preemie parents in the outside world, each and every day. When they don’t understand this “warzone”, they cannot empathize with the parents’ suffering.

The following list is a guide to better understand why a preemie parent may avoid certain situations. It can also help to explain some of the reactive behavior a parent may exhibit when they encounter one of these hazards. You might see the parent respond to these types of encounters with behavior such as anger, pain, fear, distress, sorrow or depression. Or you might notice the parent seems “out of it” for a few days or weeks following the experience. This is normal and to be expected.

Some of the common obstacles that can cause increased pain and suffering in a preemie parent:
*  seeing mothers with their new babies  or seeing a breastfeeding mother
*  watching parents take home their newborns
*  catching view of a very pregnant woman or being around pregnant women
*  visiting the obstetrician's office for an appointment or visiting doctors’ offices
*  hearing another's birth story or complaints about late pregnancy
*  seeing babies at the store, passing them in cars, watching them stroll down the block or play at a park (when the parent’s baby is still in the NICU or home isolated)
*  hearing news of a friend's pregnancy, especially one near her preemie’s original due date
*  passing by a childbirth class
*  attending showers or a bris
*  family gatherings, where babies and children are present
*  visiting the hospital or NICU where the baby stayed or NICU reunions
*  watching TV with baby commercials and programs that show pregnant women, birth, and newborns
*  receiving and reading parenting magazines, especially articles discussing the final trimester, delivery, preparing for birth, or “normal” growth and development
*  reading parenting books that fail to address preemies, or address them inappropriately
*  mothers’ discussions about deliveries or the early months
*  attending a playgroup where the children are of similar or younger age
*  visiting places frequented by young children - Walmart, grocery stores, fast food restaurants
*  attending scrapbooking classes, where photos are shared and compared
*  attending children’s programs, such as Gymboree or swimming lessons, where children are grouped by developmental skills, as well as age
*  attending birthday parties, especially first birthdays
*  visiting parks and playgrounds, especially when the child is smaller and possibly delayed

As you now see, it can be quite difficult to escape painful encounters when you are a preemie parent. Many situations act as reminders to the loss they suffer, the pain they grieve, as well as a constant comparison of their child’s development and health. It is important for friends and family to understand these painful reactions can take months and years to resolve. While it is not possible for you, the friend, to eliminate each of these encounters for the parent, you can be better prepared for the parent’s reaction if you know what red-flag situations are in advance. By understanding that these times might be stressful and full of emotions, you will be able to understand their need for an empathetic listener and/or a shoulder on which to cry if it arises.

Kerry Bone is mom to Tyler, 31 weeker, now 19 months. She is co-founder of Dallas Preemie Partners, a support group for NICU parents. Check out her website: Survival Tips for Preemie Parents at http://members.aol.com/KBone91/tbone.html
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