Heidi's family has a unique solution for the
events to commemorate the unique mixture of celebration and sadness for parents of
preemies.
"The birth of a child is usually a time for happiness and celebration. For us
parents of preemies, it is often a time of fear and uncertainty. I doubt many parents of
preemies actually get a chance to celebrate their child/children's birth because we were
just too scared."
"For the first few years of our daughters' lives, we celebrated both their actual
birthday and their due date (which was a much happier occasion and also a day before they
were released from the hospital)."
"On their real birthday, we show the girls pictures of them on their second day.
Fortunately, my father-in-law took a videotape in the NICU. I was too sick to go see them
more than about 3 minutes a day the first few days. I think it is important for my kids to
know where they started from. It puts things into perspective."
For parents who lose a twin or triplet at or after birth, the birthday party may be a
time of bittersweet memories. Rene and Bethe describe how they cope with these memories of
loss. Rene explains,
"My girls were born at 27 weeks in 1984 - and for five years I had a rough time on
their birthday due to the loss of the triplet brother at two weeks of age. I never could
understand why their birthday rather than the day he died bothered me so much, but it
always did. That made it hard to be excited on their "special day" each
year."
"After the birth of my now 9 year old, things slowly improved. But I still think
about Daniel more on their birthday than on the day he passed away."
Bethe describes the depth of her feelings around her son's birthday.
"I get so deep in a well around Adrian's birthday, most likely due to the loss of
his twin Harris after 28 horrible days. It's funny (not) I am so good about it all year
long, am able to discuss my situation (if asked) with anyone without getting emotional, am
so proud of my son and his progress, but it's soooooo deep down, this pain, than it pops
up again at birthday time. I totally lost it when they sang Happy Birthday to my son at
Charlie Rockets this past July at out little family party. I always make his
"friends" party at the end of July, to give me time to work out of the
funk."
In closing, this mixture of feelings can pervade special events, but as as Allison
explains, for parents of preemies birthdays can be also be special times of triumph and
celebration.
"We also regard Alex's birthday as the celebration of a miracle. We feel blessed
that he is alive and getting sooo big. For his first birthday we had about 80 people who
had supported us over the first year over and had a barbecue in the back yard. Alex had
just come off of his oxygen in time for the occasion. It was a joyous occasion. We had him
in a big playpen in the middle of the yard so everyone could see him."
"Events other than his birthday seem to trigger the sadness and pain we experienced
at his birth. Public events in the auditorium at school make us feel like we don't know
whether to laugh or cry. We have great pride in what he does in his unique way - his
spirit always shines through. We grieve at the gap between what 'is' and what 'might have
been'. But on birthdays, we always remember the miracle and joy of survival over terrible
odds."
For more stories of celebrations of parents of preemies, visit Celebrating Prematurity Http://www.comeunity.com/premature/celebration.html