Thursday, July 29

7:00 p.m. - 9:00 p.m. Hospitality Gathering and Discussion Groups

Topics: Fundraising and Support Groups
Becky Hatfield, Parent Support Specialist, University of Utah Hospital
Stephanie Lerner-Ernsteen, President,Evanston Hospital's ISCU Parent toParent 

Friday, July 30th

8.30 - 9.00 Registration
9.00 - 9.15 Introductions
9:15 -11.15 The importance of strong communication between parents and professionals while in the neonatal unit and after discharge

Frank Manginello, M.D.,Neonatologist, author of Your premature baby

11.15 -12.00 Imagine:  Insights on the emotions of professionals as they provide medical care and families as they cope with an overwhelming crisis.

Dianne Maroney, RN

12:00-1.30 p.m. Lunch/Vendor booths open
1.30 - 3.30 p.m Choice of afternoon session:

#1 Helping Professionals Help Parents
Mara Tesler Stein, Psy.D., Clinical Psychologist Michael T. Hynan, Ph.D. Associate Professor, Clinical Psychology, U. of Wisconsin-Milwaukee,

#2 Advocacy for children with long-term medical issues.
Sandy Gardner, RN, MS, CNS, PNP
Allison Martin, MPA. Preemie-child listowner

4:00 - 5:00 p.m. Panel discussion

Saturday, July 31

9.00 - 9.15 Introductions
9.15 - 11.15 Promoting partnership between parents and neonatologists

Guan Koh, M.D., Neonatologist, Kirwan Hospital, Townsville, Australia

12.00 - 1.30 Lunch/Vendor Booths Open
1.30 - 3.30 p.m Choice of afternoon session:

#1 Social Support for Parents of Premature Infants: A Model for Bridging the Communication Gap
Edward A. Martinelli Jr., M.Ed., father of a premature infant
and
Ethical and Humane Decision-Making in the NICU: Parents and Doctors Collaborating in the Gray Zone
Deborah L. Davis, Ph.D., Developmental Psychologist, author of Empty cradle, broken heart and Loving and letting go

#2 After Discharge: Communicating With a New Set of Professionals
Michael Tsangaris, M.D., Pulmonologist Sheena Carter, Ph.D, Developmental Psychologist

4:00 - 5:00 Panel Discussion
5.00 - 5.30 Conclusion:

Frank Manginello, M.D.

Further enquiries can be directed to:
Elaine Sayers, Director of
The Alexis Foundation
(248) 543-4169