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Topics of Discussion |
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Preemie-l discussion forum http://groups.yahoo.com/group/preemie-list |
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Sheila remarks, "My daughter Kate is 9 now, and she still has two fairly noticeable scars one from a chest tube, and the
other from her umbilical artery cutdown. Her chest tube scar is right under her left nipple, and seems to bother her less than the UAC scar
(because that one makes her look like she has two belly buttons and her friends see it and have made comments while swimming. She is pretty
well adjusted, when the other kids ask her about it, she just shrugs and says, well I was born too soon and they needed to do that to help
me live (and then she changes the subject). Her pediatrician felt bad about her chest tube scar, and I told him ah what the heck, it will
give her something to talk about on her first "sleep over" date. I don't think of the NICU when I see the scars now, but
occasionally we have to go the hospital for lab work for my younger daughter and we have to walk past their NICU(not one we were in), but
they all *smell* the same, and the smell give both me and Kate a mild anxiety attack. Kate didn't even really know why until I told her that
I too was freaked by the smell (now she asks not to go ).. Her little sister was also in the NICU briefly, but had a much nicer time and doesn't have the fear of the NICU-smell. So I'd say "all the scars" seem to stay for a very long time, they just get less volatile as time passes." Jennifer remembers, "Jonah, my 3 year-old 26-weeker has a chest tube scar that is also growing with him. So no,
physically, scars will not completely go away without surgical/cosmetic intervention. However, his scars don't bother me as much as my
own chest tube scars do! I had a disease known as empyema (effusion of a pneumonia into the chest cavity) while I was 6 months pregnant with
him, and had to have a surgical thorocoscopy w/ 3 postural drainage tubes left in for 6 weeks! I went into unstoppable premature labor the
following day. Anyway, the tubes left pretty nasty scars. . .but after 3 kids I'm not in much shape to wear a bikini anymore, anyway.
But I wanted to comment about your association of the scars with your NICU experience. It has taken me a long time to not dwell on what we
endured during that time. Actually, our scars are kind of comical as we had matching chest tubes for awhile. . . Suzanne advises, "John Henry had heart surgery and hernia surgery and those scars are truly almost invisible. The scars that show up are the ones from the chest tube during heart surgery, the CVC cutdown scar on his arm, and from being burned?? by the CO2 monitor. I just took a look, and the one from the chest tube just looks like a lighter patch of skin now (it used to be rather *gathered* looking), and the one from the CO2 monitor is now practically invisible (it was sort of a puckered scar). I think filling out with a little fat helped a bit, although he's only in the 5% -- but that's a jump from last year. The one JH notices is the CVC cutdown on his arm, he asked me *Mommy, how come I have a wishing star on my arm?* I told him because he was very special. He then asked me *Did you scratch me or something, why did you do that?!* (He's way too smart!) So I told him Dr. V (who he knows) put it there when he was in the hospital. JH knows he used to live in the hospital and understands he was born early. He asked me about that when we watched about the septuplets on TV recently -- *Was I born 10 weeks early like they were, is that why I was in the hospital?* There is something that helps get rid of scars, its like silicone sheeting I believe. From what I heard, it works most obviously on large scarring. I can't remember one of the companies, but if you do a search for 'silicone to remove scar' you should come up with something. Maybe Kylie's scars will end up like JH's chest tube scar, just a slightly lighter patch of skin." Theresa adds, "Hello, well I know exactly how you feel. Kaitlynn has been home since this past New Years Eve. She was born at 24wks and she was a twin. Her brother past away due to PROM. Being a twin made her lungs extra bad. She had 2 chest tubes on her left side but 6 on her right. The scaring is really bad. They are going to do surgery on them because the scar tissue has adhered itself to her ribcage. So as she grows her scarring gets worse. It looks like giant dimples. When she was born she weighed 1lb 10oz. She has so many scars. Everytime I see her arms, legs or feet {I play alot with her feet} I see so so many scars. As she grows her scarring gets more noticeable. Her heals are really looking bad because of all the heal sticks during her 4month stay in NICU. Kaitlynn is 9months actual age this Thursday. And she is only 5 months corrected. I wish I could tell you, the bad memories will pass, but I think they will always be in the back of our minds. Everytime I look at Kaitlynn's little face I think how blessed we are to even have her after 13years of trying. Just remember how much of a miracle Kylie is." Judi notes, "My son Max had one pneumothorax while in the NSCU. He is now 3 years old, and his scar is kind o fin the fold of his armpit, and barely visible. I often talk with Max about his stay in the hospital, in positive ways, about how the hospital and nurses and doctors helped us. I do remember that those first months after the NSCU were still raw and painful for me. Three years down the road is a different story. We are all happy and healthy, and Max would like us to bring a new baby home to live here. I am almost ready for that! I think!! :)" |
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