Alopecia Areata Support Association
(Vic), Inc.
0017772V

Support services since 1980

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Alopecia Areata Alopecia Areata

Alopecia Totalis

AASA is a voluntary group established to provide information and support for people with alopecia (areata, totalis or universalis) and their family and friends. We hold quarterly meetings which are open to all members of the public free of charge and an annual open day. Contact us for more information, to join the group, or simply to talk to someone else who's been through it.

          People who have lived with alopecia for many years know only too well the loneliness and distress the condition causes. People who have only recently developed alopecia are experiencing the distress and bewilderment of being told "nothing can be done for you, you just have to learn to live with it." In most cases, the person concerned has never heard the word 'alopecia' and has no understanding of what it means. It happens to men, women and children; it can happen at any age.

          During 1980, as a result of media publicity given to a little girl in Sydney, a number of alopecia sufferers came together. The outcome of this meeting was the formation of the Alopecia Research and Information Foundation of Australia (A.R.I.F.A.) The establishment of the Victorian branch soon followed. This has now become a fully constituted body, and in 1988 changed its name to the Alopecia Areata Support Association (Vic) Inc. Regular meetings, seminars and work shops are held where participants have benefited greatly by talking out common problems, exchanging ideas on how to apply camouflage make-up, and generally supporting one another in coping with day to day difficulties of living with alopecia. Parents gain support through discussion with other parents.

          To make the best possible impact on the health and well being of people with alopecia, we need to increase membership numbers, as in this way our voice will be strong enough to be heard. We would like to think that in the not too distant future alopecia areata and its consequences, will be better understood by both doctors and the general public.