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The
AASA is a voluntary group established to provide information and support for
people with alopecia (areata, totalis or universalis), and their family and
friends. We hold quarterly meetings which are open to all members of the
public free of charge, and an annual open day. Contact us for more
information, to join the group, or simply to talk to someone else who's
been through it.
People
who have lived with alopecia for many years know only too well the
loneliness and distress the condition causes. People who have only recently
developed alopecia are experiencing the distress and bewilderment of being
told "nothing can be done for you, you just have to learn to live with
it." In most cases, the person concerned has never heard the word
'alopecia' and has no understanding of what it means. It happens to men,
women and children; it can happen at any age.
During
1980, as a result of media publicity given to a little girl in Sydney, a number of
alopecia sufferers came together. The outcome of this meeting was the
formation of the Alopecia Research and Information Foundation of Australia
(A.R.I.F.A.) The establishment of the Victorian branch soon followed. This
has now become a fully constituted body, and in 1988 changed its name to
the Alopecia Areata Support Association (Vic) Inc. Regular meetings,
seminars and work shops are held where participants have benefited greatly
by talking out common problems, exchanging ideas on how to apply camouflage
make-up, and generally supporting one another in coping with day to day
difficulties of living with alopecia. Parents gain support through discussion
with other parents.
As
a group we hope to encourage much more research into the cause of alopecia.
To do this we need to increase membership numbers, as in this way our voice
will be strong enough to be heard.We would like to think that in the not too
distant future alopecia sufferers will be treated with more understanding
by people in general. Alopecia should be known as just another common
medical problem, in the same way as diabetes or anything else, certainly
not a condition that anyone should be made to feel ashamed of or
embarrassed about.
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Click here to read about one
of our member's experience of having alopecia
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ALOPECIA
AREATA in the NEWS
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More news when it happens!
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OUR RESOURCES
Upon
request we will send you copies of our brochures
Introductory brochure (330 Kb pdf file) for people with alopecia and
their health care providers
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HOW
TO CONTACT US
Contact can be made with the Alopecia Areata Support Association (Victoria.
Melbourne.
Australia.)
by.....
# Phoning our MessageBank on
(03)9513-8580. A group member will return your call within 24 hours.
# E-mailing us: aasavic@iprimus.com.au
# Writing
to:A.A.S.A. P.O Box 89 Camberwell Victoria
3124. Melbourne.
Australia.
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