Legal Issues |
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People with intersex conditions had a major victory in the ACT recently when the definition of Transgender was changed to remove people with intersex conditions, and, for what we believe is a world first, include a definition of intersex in legislation. The ACT (ALP) Government, with the support from the Democrats and Greens, passed the following definition of intersex in the Legislation Act 2001 (ACT): ‘An intersex person is a person who, because of a genetic condition, was born with reproductive organs or sex chromosomes that are not exclusively male or female.’ Click
here for the full article.
ACT
Law Reform Paper: "Discrimination against people affected by intersex conditions in the ACT".
NSW
Anti-Discrimination Board Forum For more information about the forum, please refer to the NSW Anti-Discrimination Board website. - Paper: "Discrimination against people affected by intersex conditions in NSW". - Summary of the presentation by the AISSGA.
Access to Medical
Records on Request VICTORIANS will have unprecedented access to their
medical records under new regulations effective today. Insurers, government agencies, schools and fitness clubs will also be bound by the new law. Health Services Commissioner Beth Wilson, who will oversee the Act, and handle complaints, said patients would only be denied access to information about them if it constituted a serious threat to their life or health. However, such decisions would be subject to appeal, she said. Ms Wilson said the Act would give patients a greater say in their treatment and improve confidence in the health system. "It will give all Victorians the right to access health information held about them, whether that is held by health service providers or others," she said. "I think it's got the potential to improve the therapeutic relationship, because openness is really conducive to trust." End Note: Similar laws exist in other states of Australia as well as overseas. The AISSGA recommends applying to get your medical records at any rate, and to seek legal advice if the hospital refuses access to your request.
Legal Issues on the Treatment of Children with Intersex Conditions. By Julie Cole, Lawyer (Melbourne). IntroductionThe
birth of a baby brings joy, hope and expectation for new parents. Immediately
following delivery, parents wait in eager anticipation for the doctor or midwife
to announce the gender of their new child.
For approximately one set of parents in every 2000, the question of
gender is not simple[1];
on these rare occasions the baby is born with ambiguous genitalia or is actually
intersexed. These are babies born with genitalia that are not easily categorised
as male or female. In their disappointment and panic, new parents often rush
into consenting to surgical procedures in an effort to “normalise” the
child. These procedures aim to
assign the child with one particular gender through surgical means. The
question of whether this current method of dealing with intersexed infants is
appropriate is worth re-examination. This paper will consider issues of consent
surrounding this controversial surgery and will question whether or not it is
actually done in the best interests of the child. It will assert that there
should be a shift in the approach of parents, doctors and the courts in the
treatment of intersexed infants and that surgery should be delayed until such a
time that the child attains a level of competency known as “Gillick competency”[2]
and consents to the treatment personally. This view is supported by a growing
number of intersexed people[3]
and activists[4] working in this area. Initially
this may seem problematic; the inevitable question arises as to which gender the
child will be raised until that time. It is not suggested that babies be raised
genderless. Rather, doctors can
make a gender evaluation based on the evidence,[5]
and the baby can be raised as determined by such an evaluation. This may include
any reversible medical treatment that may be required, but does not include
unnecessary irreversible treatment, namely non-therapeutic surgery which
attempts to permanently assign the child to a particular gender.[6]
Upon reaching sufficient maturity, the child may decide whether or not to have
surgery and continue treatment.
Current Paradigm of TreatmentBefore
understanding how the law can effect change in this area, it is important to
have a basic overview of the present approach to intersexed infants, in relation
to both their treatment by the medical profession and their legal standing as
minors. The
surgery-centred model is the predominant model in dealing with intersexed
infants in Australia. It is supported primarily by pediatric urologists and
pediatric endocrinologists who are concerned with “normalising” the infant
to fit into a western model of gender identity.[7]
There is a belief that the use of cosmetic surgery and hormone treatments will
eliminate future psychological distress, and that therefore the intersexed child
should be treated as soon as possible. There is further concern that delaying
surgery will subject intersexed children to ridicule and rejection by their
peers.[8] Thus,
the current approach includes the gathering of a team of specialists to decide
upon a gender for the child and the commencement of treatment which includes
surgery on the genitals, hormone treatments and the psychosocial rearing of the
child according to the stereotypes of the chosen gender.[9] Consent“(T)he law cannot draw the line between different degrees of violence and therefore totally prohibits the first and lowest stage of it; every man’s person being sacred and no other having a right to meddle with it, in any the slightest manner”.[10] As
a result of their counselling by the above mentioned medical professionals, and
their desire to have a “normal” child, parents will usually consent to the
surgical treatment of their intersexed child. Children
under the age of 18 are considered minors.[11]
Doctors are not required to receive patient consent when dealing with a minor
but must obtain consent from a parent or guardian. This consent is fairly broad; it is limited only by the
requirement that the surgery must be done in the child’s best interests. The
“best interests” principle is based not on parental rights but on parental
responsibility;[12]
fundamental to this principle is that parents have obligations which
exist to benefit their children, not to control them. This is reflected on and
supported by Blackstone, who notes that “the power of parents over their
children is derived from …their duty”.[13]
Parental responsibility applies until the child reaches 18 years of age. Several
powers are attached to it including the ability of parents to make various
medical decisions on behalf of their children.[14] Early
case law shows that parental rights applied fully until the time at which the
child reached the age of majority.[15]
In 1883, Lord Denning rejected this interpretation and introduced the idea that
parental rights were “dwindling” rights and that the courts should be very
hesitant to enforce parental rights over the wishes of their children.[16]
He further noted that the rights “start(s) with a right of control and ends
with little more than advice”.[17]
This concept of a dwindling right has been extended in more recent cases,
first in Gillick’s case,[18] then in Secretary,
Department of Health and Community Services v JWB and SMB[19]
where it was approved.
Gillick's
case[20] The
principle first held out in Hewer v Bryant[21]
was applied to parental powers generally. In Gillick’s case[22],
Mrs Gillick sought assurance from the Health Authority that her daughters, who
were minors, would not receive any contraceptive advice without her consent. Not
having received that assurance, Mrs Gillick took the matter to the House of
Lords, which in turn considered whether contraceptive advice and treatment could
lawfully be given to a female minor without parental consent. Mrs Gillick’s
argument that minors do not have the legal capacity to give consent to medical
treatment was rejected by the House of Lords, which held that the rights of
parents declined as children became increasingly competent with age and
maturity. The majority[23]
agreed that competency is assessed through consideration of the child’s
ability to understand the proposed treatment, based on the notion of sufficient
intelligence and understanding:[24]
“Parental rights yield to the child’s right to make his own decisions when
he reaches a sufficient understanding and intelligence to be capable of making
up his own mind on the matter requiring decision”.[25]
Marion's
Case[26]
In
this case, the High Court of Australia was faced with the issue of
decision-making on behalf of people with disabilities. Marion was a severely
disabled 14-year-old girl whose parents wanted her to be sterilized. Generally,
parents can authorise medical treatment for a child; however this case limited
the extent of such a power by forbidding parental authorisation for the
sterilization of a child for non-therapeutic purposes. The High Court decided
that it alone had the power to determine whether sterilization was in the best
interests of the child and that it would do so by considering the circumstances
of each individual case. In making such determinations, the High Court decided
it would adopt the principle of diminishing parental powers outlined in Gillick’s
case[27].
The
principle of diminishing parental powers applies equally to a child with or
without disabilities depending on the child’s understanding and intelligence.[28]
The rights of parents to determine whether a minor will have medical treatment
terminate if and when the child achieves a sufficient understanding and
intelligence to be deemed to make such a decision independently. There are
various circumstances in which parents have the authority to consent to
treatment for their incompetent minor; however in certain situations such as
non-therapeutic sterilization, court authority is still required: “…the
overriding criterion to be applied in the exercise of parental authority on
behalf of the child is the welfare of the child, objectively assessed”.[29]
Should parents be able to consent to cosmetic surgery on infants with intersex conditions?In
Marion’s case[30]
the Court considered limits on parental ability to make decisions regarding
their children. However, this case gave no clear indication as to whether the
Family Court’s authorisation in such cases is required for other
non-therapeutic procedures as well as sterilization. It may be assumed that
court authorisation is required, but five members of the High Court noted that
parents have the power to authorise non-therapeutic medical procedures such as
cosmetic surgery.[31]
Certainly, wise parents and doctors would seek authorisation by the Family Court
where there is doubt.[32]
The
Family Court has recently published guidelines outlining the circumstances in
which court authorisation is required and defined such situations as occurring
when “a major medical procedure that may permanently affect (a child’s)
quality of life” is being contemplated.[33]
Such treatments include sterilization, as was the issue in Marion’s case, as well as other procedures which are considered to
be ethically sensitive or disputed. Included in these categories are those types
of surgeries which are invasive, irreversible, major or those which may impose a
significant risk to the future capacity of the child. Gender assignment surgery
could certainly fall within this scope and should therefore be beyond parental
authority.[34]
In
Re A (A Child)[35],
court approval was considered necessary. In this case, A’s mother applied on
A’s behalf for authorisation for gender reassignment as a result of A’s
Adrenal Hyperplasia condition. As an infant A’s penis had been removed and A
was raised as a girl. As the result of a lapse in hormone treatment, A became
quite masculinized at the onset of puberty. In addition, A expressed a desire to
be male. Although a minor can have the legal capacity to decide on a medical
procedure if found to have “sufficient maturity and intelligence to understand
the nature and implications of the proposed treatment”,[36]
it was decided that in Re A,[37]
the minor’s understanding was not sufficient. As a result of A’s inability
to fulfil the Gillick test, a court
order was required. The
factual situation in Re A[38]can
be contrasted drastically with that which arises upon the birth on an intersexed
infant. When an intersexed child is born, doctors and parents make all medical
decisions, very rarely (if ever) consulting the courts for authorisation or
approval.[39]
The minor in Re A[40] was a teenager who wanted
surgery but was not found to be Gillick competent so the question was put to the court.
In
the case of intersexed infants, the question of surgery does not make it to the
courts. Decisions are in the hands of parents who are in a state of distress:
they have a desperate desire to have a “normal” baby, and find the site of
the ambiguous genitalia bothersome. In such a state they are often all too
willing to comply with whatever suggestions doctors put to them, and will
therefore readily agree to surgery. It is questionable whether parents in this
state are capable of responsible decision-making and often too willingly comply
with whatever suggestions doctors put to them.[41]
Should the Courts Decide?Surgery
on intersexed infants could certainly fit within the Family Court’s definition
of surgery which is ‘ethically sensitive’, ‘irreversible, ‘major’ and
‘invasive’[42].
Transferring authority to the courts is equally problematic. Even if it could be
successfully argued that parents and doctors should not have the authority to
consent to surgery, it is questionable whether the courts are any more capable
of deciding the medical fate of these children. The courts are as easily swayed
as distressed parents by the opinions of medical professionals. Prior to Marion’s
case, the question of court involvement was raised in other similar cases: Re a Teenager,[43]
Re Jane,[44] Re Elizabeth[45] and Attorney
General (Qld) v Parents (In re S).[46]
The result in each decision was to permit the sterilization of disabled young
women. Although the question of mandatory court involvement is divided in these
cases, they are examples of how readily the court will approve major surgery on
the suggestion of medical professionals. However, the reason that mandatory
court involvement was decided in Marion’s
case is because the majority[47]
disagreed with the view of Cook J in Re a
Teenager[48]. Cook J believed that the
courts can have absolute faith in the medical profession and their integrity.
The majority[49]
agreed with Nicholson CJ in Re Jane[50]
that there are some medical practitioners who also act with impropriety. While
the majority sees the value in putting the question to the courts, in practice
the courts are heavily swayed by the recommendations of medical professionals,
and judges have been criticised for placing too much value on the advice of
medical practitioners.[51] Medical opinion combined
with parental support renders it unlikely that a court would refuse
authorisation for surgery on an intersexed infant; based on medical opinion
alone, the court is likely to hold that surgery is in the best interests of the
child. Thus, while there is the
appearance that decision-making is in the hands of the courts, in practice they
act as a rubber stamp; doctors are the true decision-makers. Conversely,
even if the courts were the genuine decision-makers, judges have no real
knowledge or expertise in this area. It
is questionable whether judges are capable of understanding the physical and
psychological issues surrounding medical alteration of intersexed infants.
Clearly
a simple solution is to postpone surgery until such a time that the intersexed
child who has passed the Gillick competency
test requests the medical procedure. Best Interests PrincipleThe
“best interests” principle was given consideration in Marion’s case.[52]
The judges strongly considered the extent to which parental authority
applies to medical procedures. They concluded that the overriding consideration
in the exercise of parental authority is whether when, “objectively
assessed”, such authority is in the best interests of the child. When the
court finds that the exercise of parental authority would serve in the child’s
best interests, it can then authorise the parents to consent to surgery.[53] The standard in deciding
“best interests” is that the decisions “should be reached in a state of
firm satisfaction upon convincing evidence”.[54]
In
Marion’s case, The High Court has
provided some guidance regarding where the best interests of the child may lie
in relation medical treatment.[55]
It gave some indication of the importance of determining the child’s future
capacity to consent before the court authorises irreversible treatment.[56]
Here, Brennan J held that non-therapeutic sterilization of a child cannot be
authorised, either by guardians or by the Family Court under any circumstances.[57]
He stated that the most effective way to deal with controversial non-therapeutic
surgery was to postpone it until such a time that the individual might
personally decide. This concern was also reflected in the earlier decision
reached in Re D.[58]
In this case, surgery to sterilize an 11-year-old was not permitted because it
was held that in later years she would be capable of making her own choice
regarding surgery. McHugh noted that if there was any real possibility that
children would acquire the capacity to choose whether or not to be sterilized,
then sterilization would not be in their best interests unless required on
urgent health grounds: “Accordingly, it would be unreal to suggest that a
(decision-maker) should make the decisions which the child would make. What the
child would have decided, if confronted with the problem, can only be a matter
of speculation”.[59] There
is one fundamental difference between the disabled minor and intersexed infant.
It is unlikely that the intellectually disabled minor will ever obtain the
capacity to consent to treatment. On the other hand, the intersexed infant will
almost certainly obtain that future capacity. We can conclude from this that, if
the “best interests” test is correctly applied to intersexed infants, the
court would not authorise non-reversible surgery. Problems with the “Best
Interests” Test:
The
best interests test is vague and indeterminate As
the majority noted in Marion’s case,[60]
it is impossible to formulate a precise test which is capable of answering the
question of best interests. In their chief judgement Mason CJ, Dawson, Toohey
and Gaudron JJ took note of the principles to be applied in making a decision in
the best interests of the child. They stated that it was impossible to formulate
a rule which would satisfactorily determine what was in a child’s best
interests.[61] Brennan
J also noted the limited usefulness of “best interests” saying that it
“does no more than identify the person whose interests are in question, it
does not assist in identifying the factors which are relevant to the best
interest of the child”.[62]
This ambiguity leaves decisions of best interests to individual judges most of
whom have no understanding of what is in the best interests, medically or
psychologically, of an intersexual infant. The
courts themselves have recognised the ambiguity of this test and raised concerns
regarding its arbitrary exercise. Judges feel that they can never truly be sure
that they have made the correct decision because they are forced to decide by
balancing all the considerations.[63]
It is therefore impossible to make a uniquely correct answer.[64] The
focus of best interests is on societal norms The
modernist approach to sexuality is to presume that there are two distinct
genders at either end of the spectrum, with the fully masculized man at one end
of the spectrum, and the fully feminized woman at the other. However, there are
very few people who actually conform to such extremes, and indeed it is hard to
know where the boundaries between acceptable and non-acceptable levels of gender
variation actually lie.[65]
Doctors tend to interpret the norm very strictly, leading to an outrageous
number of genital assignment surgeries being performed. Despite
the complexity of the issue, the court will generally reflect the majority view
that a good quality of life requires that the individual have normalised
genitalia; in addition, following the example set by doctors, they are likely to
apply a strict definition of what constitutes normal. In determining the best
interests of the child, judges will therefore tend to view surgery as being in
the child’s best interests.[66]
Fogarty
J in Horman[67]
maintained that the “best of the welfare of the child has to be determined
having regard to contemporary social standards”.[68]
It must be questioned whether we need to cure the intersexed child, or the
society: “it’s difficult to be Black in this culture but we don’t bleach
the skin of Black babies”.[69]
During
later discussion on the actual medical treatment performed on intersexed
infants, it will become clear that through adhering to societal norms, the best
interests of the intersexed child are not necessarily determined correctly. Whose
best interests are considered? In
Marion’s case[70]
the Court stated that while the child’s interests prevail, consideration would
be given to the needs of carers.[71]
Deane J agreed with the majority in stating that sterilization could not be
justified under the best interest principle “merely because it will make
easier the task of those responsible for the child’s protection and care”.[72]
However, he went on to note that the happiness of carers could be taken into
account as an indirect factor in the child’s welfare.[73]
This begs the question: is it in an intersexed child’s best interests to have
surgery so that it will be more likely to be accepted or loved, thus receiving
better care? Taken
to its logical extreme, this argument assumes that if a carer’s happiness is
an indirect factor in the child’s welfare, then surgery on the intersexed
child is performed for the benefit and best interests of the parents. It is the
parents who are uncomfortable with the child’s physical appearance and it is
they who fear that they will not be able to accept or love the child fully as
long as the child remains “different”. It would then be in the best
interests of the child to have surgery since the result would be more loving
parents. Clearly this is an extreme view, and one which would be cause for grave
concern. A milder example but one that follows similar reasoning, can be found
in Re GWW (husband) and SMW (wife).[74]
In this case it was decided that it was in the child’s best interests to
donate bone marrow to an aunt, since he would benefit from continuing a loving
relationship with her if she survived her leukaemia. It is disturbing to
consider how far the best interests principle will stretch to accommodate the
requests of the caregivers while it masquerades as applying to the child. Is Medical Intervention Necessary?“Genital ambiguity is ‘corrected’ not because it is threatening to the infant’s life but because it is threatening to the infant’s culture”.[75] Genital
surgery on intersexed infants is generally described as necessary; however there
is a great variation in degree of necessity ranging from that which is
lifesaving to that which is purely aesthetic. True
hermaphroditism, where the infant is born with one or more ovotestes, is very
rare. More common are either female
or male pseudohermaphrodites. In the case of those classified as female, the
infant will often have ovaries and have an XX chromosomal basis. External
genitalia often looks masculinized, with the clitoris resembling a small penis.
Those who are classified as male pseudohermaphrodites generally have testicles
and an XY chromosomal make-up. This category consists of two groups: those who
are affected by Androgen Insensitivity Syndrome and those who have been affected
by 5-alpha-reductase deficiency.[76] Whatever
the condition or its causes, “ambiguous genitalia” or intersexuality does
not constitute a medical emergency and only very rare cases will it signal the
existence of a metabolic disease. Such is the case when a child has congenital
adrenal hyperplasia (CAH), which is the only life-threatening condition
connected to ambiguous genitalia. It is worth noting, however, that it is the
CAH which is life-threatening and not the ambiguous genitalia. Thus, it is
unnecessary to perform genital surgery on infants who have CAH.[77] There
is growing evidence that there are numerous problems associated with performing
genital surgery on a child before the onset of puberty.[78]
This is primarily because the growth and changes that take place during puberty
can alter the “normalised” genitalia. In addition, it is worth noting the
somewhat aggressive treatment applied to some intersexuals following surgery. Genital
surgery can cause physical harm such as scarring, chronic pain and irritation,
reduction of sexual sensation, as well as psychological harm. Females who have
undergone genital surgery are often plagued with urinary and vaginal infections.
The gender assignment surgery can be performed on children at any period from
when they are a week old to when they become toddlers. The surgeries are painful
and consist of cutting and carving the genitals, often repeatedly throughout
childhood and beyond puberty.[79]
Sometimes a laprotomy is performed to remove internal organs and the results can
be devastating, as one recipient testifies: The irony … that the surgery and ‘therapy’ which was imposed upon me for the purpose of correcting my abnormal sexual and genital condition was meant to enable me to live a ‘normal’ life. But it was exactly my ‘treatment and how it was inflicted upon my being which really damaged me more than anything else.[80] Perhaps
most disturbing is that the vagina often needs to be artificially dilated and
reconstructed in order to be kept open. Without the artificial dilation it is
not unusual for the vagina to have closed in by the time puberty is reached
which usually leads to more surgery. At least if surgery were delayed until the
girl was capable of consenting, less surgical interventions would be necessary
and the girl would be able to perform the dilations herself, thus saving her
from the embarassment of having to endure dilations at a young age.[81]
One mother relayed the story of her 18-month-old child who had had a
vaginoplasty as an infant. The toddler was pulling out her eyelashes and biting
her nails in response to the dilation treatment. When the mother stopped the
treatment, the obsessive behaviour discontinued. Comparisons
can be drawn between the effects of genital surgery and treatment with that of
sexual abuse,[82] and there is evidence
that these children experience their surgery and treatment in this way.[83]
Like victims of sexual assault, they are subject to repeated genital trauma. In
addition, just as is the case with sexual abuse, there is shame and stigma
attached to intersexuality and surgery which means that it must remain a secret,
known only to the family. Symptoms
arising from the treatment are similar to those which accompany sexual abuse and
include depression, self-destructive behaviour, low self-esteem, guilt, anxiety
and stress regarding the need to maintain secrecy.[84]
If treatment of intersexual children were viewed as sexual abuse, then it
would cease due to illegality. We
should also consider whether surgery on intersexual infants is tantamount to
genital mutilation. Female genital mutilation is condemned within our society by
a range of organisations including governments, law reform agencies and
religious and political groups. Among those who deplore the practice is the
United Nations; in a recent declaration, its definition of violence against
women included “any act of gender based violence that results in, or is likely
to result in, physical, sexual or psychological harm”,[85]
and continued to include genital mutilation within the scope of this definition.[86] A Family Law Council
Report tabled in the Commonwealth Parliament in 1994 recommended legislation
directly outlawing female genital mutilation.[87]
The Commonwealth Attorney General[88]
accepted the recommendations of the report and ordered that the states and
territories enact legislation outlawing female genital mutilation. He threatened
that if the states and territories were not willing to make such mutilation a
criminal offence, then the Commonwealth would use its external affairs power to
do so.[89]
Victoria has since legislated specifically criminalizing the practice.[90] Many
activists have likened female genital mutilation to the procedures performed on
intersexed infants. The Intersex Society of North America (INSA) is an
organisation dedicated to asserting intersexual identities and lobbies to put a
halt to surgery on intersexed infants. ISNA has lobbied medical associations and
health administrators to stop the medical practices on intersexed infants which
they compare to mutilation.[91]
ISNA links genital mutilation and surgery on intersexed infants, noting that
both are “culturally determined practices of harmful genital surgery”.[92]
In fact, these American activists claim that such surgery constitutes genital
mutilation and is therefore against the law. By claiming this, they aim to force
doctors to refuse to perform surgery. One means of outlawing surgery in
Australia is to draw similar comparisons and in doing so, to try to convince the
courts that this surgery should be illegal under the Crimes (FGM) Act.[93]
Alternative ApproachesOther
cultures have traditionally held more progressive approaches intersexed infants.
Firstly, some cultures more readily accept the existence of intersexed
infants and therefore do not view them as requiring surgery. Secondly, some
courts in other jurisdictions are taking what can be considered a “preferred
approach” in cases where surgery is an issue.
The
Sambia of Papua New Guinea have long recognised what they term a person of
transformation or Kwolu-aatmwaal -
that is, a female who turns into a male. Likewise,
the Hiras of India are understood as an alternative sex within their culture.
These classifications challenge the strict boundaries placed on gender in the
west.[94] The
Constitutional Court of Colombia recently issued two decisions restricting the
ability of parents and doctors to consent to and perform surgery on intersexed
infants.[95]
The surgery is known in Columbia as Intersexed Genital Mutilation has
been practised there and in most industrialised countries for the past few
decades.[96]
In the relevant cases, the judges stated that it was possible for the
courts to consent to surgery but only in instances where they had access to full
and accurate information about the risks involved and about alternative
treatment models. New Paradigm of TreatmentIntersexed
infants and adults are not abnormal and in need of “normalising” surgery.
Rather, their genitals are merely an anatomical variation of the
“standard” genders. While some intersexed genitals may signal a metabolic
disease, these incidents are rare; indeed even in such cases the genitals
themselves are not diseased and do not pose a medical problem, therefore surgery
is not therapeutically required.[97]
Cosmetic surgery on the genitalia of intersexed infants should not be routine
but should be performed only if and when the child is capable of consenting to
such surgery. Any irreversible treatment is unacceptable and all secrecy
surrounding treatment should be avoided. This new paradigm is not antisurgery.
Many intersexed people request surgery and, at such a time, surgery should be
performed. It should also be
performed on infants who medically require it. It
is important to note that this new paradigm of treatment does not advocate that
children be raised genderless.[98]
Doctors and families can assign a gender to the child based on genetic tests and
information and histories of intersexed people with their particular child’s
condition. Gender is determined by various factors, not merely by the appearance
of genitals, or by fertility, hormones, or social conditioning.
CONCLUSION: THE ROLE OF THE LAW The
1989 United Nations Convention on the Rights of the Child clearly demonstrated a
new recognition of children’s rights; and children in all countries should be
permitted to exercise their rights, powers and freedoms. Through ratification,
the Australian Government has acknowledged that the child is a competent
decision-maker on matters which concern the child’s future.[99]
In addition, there is a growing belief that involving children in
decisions regarding their medical treatment will benefit their psychological
health and ultimately increase the efficacy of the treatment.[100] Common LawThrough
their judgements, judges have the opportunity to help shape ideas of societal
norms. When cases dealing with gender assignment reach the courts, judges should
consider the social and psychological impact which such surgery is likely to
have on infants. They should use these situations as an opportunity to be
catalysts for change through pointing out that there is nothing wrong with
intersexed children, even though their appearance does not conform to that of
the “standard” of male or female. In addition, the courts must reconsider
the “best interests” test in order to determine whether it adequately serves
intersexed children by truly considering their best interests. Legislative Changes While
many issues of medical law are resolved within the common law, there is need for
statutory reform.[101] Unfortunately, many
common law principles do not adequately cover this area of law.
Parliament must consider drafting workable laws in this area in order to
relieve some of the ambiguities currently surrounding the area of consent and
best interests of the child and to aid in defining and outlining the rights of
intersexed children. In addition, there is a need to clarify the issue of when
someone can be considered a competent minor who is able to make decisions on
their own behalf.[102] Currently,
the authority to give painful and harmful surgery to intersexed infants is
vested in parents, doctors and the courts. Legislation which rejects the
surgery-centred model of treatment and favours the psychology-centred model is
necessary in order to protect the best interests of intersexed children. The
result of such legislation would be criminal penalties placed upon doctors who
perform gender assignment surgery before the child reaches Gillick competency and consents to surgery.
[1] Rita Carter, ‘The Third Sex’, The Sunday Telegraph (Sydney), 10 September 2000, 16. [2] Gillick v West Norfolk and Wisbech Area Health Authority [1986] AC 112 (Gillick’s case). [3] Interview with Anthony Briffa, AIS Support Group Australia member, AIS Victoria, Melbourne, 11 September 2000; John Colapinto, As Nature Made Him; The Boy Who was Raised a Girl (1999). [4] Alice Dreger, Hermaphrodites and the Medical Invention of Sex (1998); Suzanne J Kessler, Lessons from the Intersexed (1998). [5] Eg anatomical presentation, genetic composition, etc. [6] Alice Dreger, above n 4. [7] Alice Dreger, ‘Notes on the Treatment of Intersex: Comparison of Old and New Models of Treatment’, http://www.isna.org/compare.html. [8] Ibid 3. [9] Dreger, above n 4. [10] Blackstone’s Commentaries (17th ed 1830 Vol 3, 120). [11] Age of Majority Act 1977 (Vic) s.3. [12] Family Law Act 1975 (Cth) ss 61B, 61C(1). [13] Blackstone’s Commentaries (1 B1 Com, 17th ed, 1930, 452). As appears in Peter MacFarlane Health Law (3rd ed, 2000). [14] Loane Skene, Law and Medical Practice (1998), Ch 4. [15] Re Ager v Ellis (1883) 24 Ch D 337. [16] Hewer v Bryant (1970) 1 QB 357 at 369 [17] Ibid at 369. [18] [1986] AC 112. [19] (1992) 175 CLR 218 (Marion’s case). [20] [1986]AC 112 [21] (1970) 1 QB 357. [22] [1986] AC 112. [23] Lords Fraser, Scarman, Bridge and Templeman [24] [1986] AC 112 at 169-170. [25] Ibid at 186 (Lord Scarman). [26] (1992) 175 CLR 218 [27] [1986] AC 112. [28] Anthony Dickey, Family Law (3rd ed, 1997). [29] Marion’s case (1992) 175 CLR 218 at 250. [30] (1992) 175 CLR 218 at 301. [31] Ibid at 79, 180, 79, 205. [32] Anthony Dickey, ‘The High Court’s Decision in Re Marion’ (1992) 6 Australian Journal of Family Law, 97. [33] Family Court of Australia, ‘A question of treatment, The Family Court and special procedures for children, an introductory guide’ 1996. [34] Marion’s case (1992) 175 CLR 218 at 313, (Mason J). [35] [1993] FLC 92-402. [36] Gillick’s case [1986] AC 112 at 186. [37] [1993] FLC 92-402. [38] Ibid. [39] Dr Neil Campbell, ‘Selection For Treatment; Critically Ill Newborns’ (University of Melbourne – Health and Medical Law lecture #7. 4 September 2000). [40] [1993] FLC 92-402. [41] Suzanne Kessler, Lessons From the Intersexed (1999) 75. [42] Family Court, above n 33. [43] (1988) 94 FLR 181. [44] (1989) 13 Fam LR 47. [45] (1989) FLC 92-006. [46] (1989) 38 FLR 41. [47] Mason CJ, Dawson, Toohey and Gaudron JJ. [48] (1988) 94 FLR 181. [49] Above n 47. [50] (1989) 13 Fam LR 47 at 26. [51] J Blackwood ‘Sterilisation of the Intellectually Disabled: The Need for Reform’ (1991) 5 Australian Journal of Family Law 138. [52] (1992) 175 CLR 218. [53] Loane Skene, ‘Consent To Procedures for Children - Lecture 4’ (University of Melbourne, Health and Medical Law, 18 August 2000). [54] Sarah’s case, L and GM v MM, Director General, Department of Family Services and Aboriginal and Islander Affairs (1994) FLC 92-449 at 80, 680 (FCA, Brisbane, Warwick J). As appears in Loane Skene, above n 9, 117. [55] Patrick Parkinson, ‘Children’s Rights and Doctors’ Immunities: The Implication of the High Court’s Decision in Re Marion’ (1993) 6 Australian Journal of Family Law 105. [56] (1992) 175 CLR 218 at 250. [57] Ibid at 194-195. [58] Re D (A Minor) [1976] Fam 185. [59] (1992) 175 CLR 218 at 316. [60] (1992) 175 CLR 218 at 251. [61] Marion’s case (1992) 175 CLR 218 at 251. [62] Ibid at 270. [63] Christian Witting, ‘Medical Decision-Making for the Incompetent’ (1996) 3 Journal of Law and Medicine at 397. [64] S Parker, P Parkinson and J Behrens, Australian Family Law in Context (1999) 740. [65] Rita Carter, above n 1,16. [66] Christian Witting, above n 63 at 397. [67] (1976) FLC 90-024. [68] Ibid at 75. [69] Suzanne Kessler, below n 75, 34. [70] (1992) 175 CLR 218. [71] Ibid at 251-252. [72] Ibid at 300. [73] Ibid at 301. [74] (1997) 21 Fam LR 612. [75] Suzanne Kessler, ‘The Medical Construction of Gender’ (1990) 16 Journal of Women in Culture and Society 3. [76] Alice Dreger, above n 4. [77] Ibid at 189. [78] Ibid. [79] H S Kupperman, Human Endocrinology (1963) 1008. [80] Kiria Triea http://www.qis.net/triea/sallie.html. [81] Alice Dreger, above n 4, 194. [82] Suzanne Kessler, above n 75, 63. [83] Kiria Triea, ‘The Medical Management of Intersex Children: An Analogue for Childhood Sexual Abuse’: http://www.qis.net/triea/medical_abuse.htr. [84] R K Oates, ‘The Effects of Child Sexual Abuse’ (1992) 66 Australian Law Journal 186. [85] Declaration on the Elimination of Violence Against Women: UN Doc A/48/49 (1993), Article 1. [86] Ibid at Article 2(a) [87] Nicholas Pengelly, ‘Female Genital Mutilation’ (1998) 24 Monash University Law Review. [88] Mr. Lavarch. [89] Commonwealth, Hansard, House of Representatives. 30 June 1994, 2441. [90] Crimes (FGM) Act 1996 (Victoria). [91] ‘Intersexual Rights’ Hermaphrodites with Attitude at http://www.altculture.com/aentries/i/intersexual.html. [92] Suzanne Kessler, above n 79, 81. [93] 1996 (Victoria). [94] Gilbert Herdt, Third Sex, Third Gender: Beyond Sexual Dimorphism in Culture and History (1994) 51. [95] SU-337/99, May 12 1999 and T-551/99, Aug 2 1999. [96] ‘Columbia High Court Restricts Intersex Genital Mutilation’, at http://www.insa.org/colombia/index.html [97] Alice Dreger, above n 7. [98] ‘ISNA’s Patient-Centred Approach’, The Lawson Wilkins Pediatric Endocrinology Society Annual Meeting, at www.isna.org [99] Kathleen Funder, Citizen Child: Australian Law and Children’s Rights (1996) 12. [100] Leanne Bunney, ‘The Capacity of Competent Minors to Consent to and Refuse Medical Treatment’ (1997) 5 Journal of Law and Medicine, 52. [101] Patrick Parkinson, above n 55, 125. [102] Leanne Bunney, above n 103, 78. |
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