When Tony Briffa was born at Altona Hospital in 1970, doctors were unable
to determine his gender. The younger of a set of twins, Briffa's sister
Catherine was confidently announced to be a girl, but for Tony, there was much
doubt.
Sent to the Royal Children's Hospital for further investigation, it was
discovered that Briffa had been born with a rare intersex condition known as
Incomplete Testicular Feminisation (now referred to as Partial Androgen
Insensitivity Syndrome).
Establishing that Briffa was genetically male, doctors decided he would be
better off assigned as a female. His parents were advised that he was a girl,
and to raise him accordingly. They were not told their son had testes; just
that he had gonads (which medically, can be either ovaries or testes).
Maltese immigrants with limited English, Briffa's parents did not question
the diagnoses and accepted that "Antoinette" did not have female
reproductive sex organs, would never be able to have children and would
require a number of surgeries, as well as lifelong hormone treatments.
"In order to make sure that I accepted being a girl, my parents were
advised to unambiguously raise me as one. That meant a pink room, lots of
dolls for Christmas and birthdays, frilly dresses and my ears being pierced
when I was two." So as not to disrupt his schooling, Briffa's childhood
was punctuated by summer holidays spent at the Royal Children's Hospital.
By the time he turned seven, his phallus had started to grow. He says that
doctors falsely informed his parents that his testes were cancerous, which
resulted in him being castrated and consequently prevented him from
masculinising any further.
About 5000 Australians are currently diagnosed with atypical genitalia.
Androgen Insensitivity Syndrome affects one in every 133,000 people.
Briffa says the examinations he was subjected to every few months as a
child and adolescent made him feel like a sideshow freak.
Believing it to be a form of child abuse (albeit unintentional), the
constant invasive examinations left Briffa physically and emotionally damaged.
Brought up as a girl and being conditioned to think and act as one
definitely did not translate into feeling like one. A tomboy, he was not
interested in stereotypical girlish pursuits, and was always fighting with
boys.
He began receiving hormone treatments at 11, which resulted in him going
through an artificial puberty. From the age of 12 onwards Briffa repeatedly
told doctors he was not a girl, that he was a boy and did not want breasts,
indeed, he requested a mastectomy.
They refused, informing him that no matter how much testosterone they
pumped into his body, it would reject it. It was not until 1999, that Briffa
discovered this to be untrue.
"They didn't tell me I had Partial Androgen Insensitivity Syndrome;
they told me I had Complete AIS. They didn't explain there was a difference
between the two."
Partial AIS meant that he would have masculinised to a certain degree
without medical intervention. Rather than having synthetic femaleness forced
upon him, he is adamant that doctors should have held off performing the
surgeries and hormone treatments until he was old enough to choose which sex
he would rather live as. Frustrated, angry and depressed, he occasionally
contemplated suicide as a teenager. "It was like being in a black,
endless tunnel with no light."
Describing himself as a fairly popular girl at school, he says he never
socialised outside of it. "I had lots of friends, but I never even went
to one school dance. I just threw myself into school work and music."
After VCE, he enrolled in an engineering degree at university (a course
where he was only one of two women in the year). "Well, there was one
woman, 49 men and then there was me."
Briffa tried his best to accept being female. "In desperation I tried
to be what everyone wanted me to be - a normal girl." He married his
first boyfriend. Briffa's husband knew the truth about his condition, but the
marriage was short-lived. Naturally attracted to females, he then identified
himself as a gay woman. "That wasn't comfortable either, because to be a
lesbian, you actually need to be a woman."
In 2000, at the age of 30, Briffa decided once and for all he would live
how he'd always felt - as a male.
At only 158 centimetres, Briffa cuts a stocky, diminutive figure. Without
medical intervention he would have reached a normal stature. "Doctors
made me 5 feet 2 inches on purpose. My estimated height (if I'd been left
alone) was between 5 feet 8 and 5 feet 10, and that was considered far too
tall for a girl. So now, I'm a very short man. It's something I always feel
inadequate about." An aerospace engineer with the Department of Defence,
Briffa still lives in Altona where he is a community activist and passionate
advocate. He has just been elected president of the Seabrook Community Centre
and is secretary of the AIS Support Group, as well as the second-term
president of the Genetic Support Group of Victoria.
A third-generation Altona resident, he is passionate about the area and its
people's welfare. After two unsuccessful attempts at standing for parliament
as a Greens Party contender in the 2000 federal and 2002 state elections, he
ran as an independent candidate for Hobsons Bay Council in November.
He received 27 per cent of the primary vote and came in second behind the
incumbent ALP councillor.
A full-time foster parent to two siblings, a 15-year-old girl, and
13-year-old boy, the teenagers have known him as a foster mother and foster
father. Briffa says neither of them have an issue with it; he is simply Tony.
Rather than being bitter and vengeful, the years of taunts, insults and
prejudices have left Briffa a resilient pragmatist with a wonderful sense of
humour. He is however, fierce in exposing the truth and seeking justice.
Currently involved in legal action, he is suing two of his doctors for alleged
malpractice against him from the age of 18 onwards. He says if he could, he
would seek the same regarding his entire childhood, but the statute of
limitations has now passed, leaving him no legal avenue to pursue such
litigation.
Briffa has not had surgery to rebuild his genitalia and, at this stage,
does not intend to. Having encountered myriad problems with the ongoing
testosterone treatment he now receives, he has been subjected to repeated
infections and hospitalisation.
Preferring to concentrate on priorities such as his kids, family and
community commitments, he sees having an intimate relationship as problematic.
"I would obviously want a relationship with a heterosexual female and I
can't really function as a heterosexual male so I tend to avoid relationships
to be honest."